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Fibrous Dysplasia and McCune-Albright Syndrome

Fibrous Dysplasia Foundation is now The FD/MAS Alliance.

A message from Lauren Ruotolo, President of the FD/MAS Alliance

Welcome to the new FD/MAS, a brand new place for all patients, caregivers and scientists. As a McCune Albright’s Syndrome patient, let me assure you that this is much more than a name change, this is time to represent our entire community. It’s a recognition that expands the breadth and depth of our community to make sure everyone who identifies as FD and/or MAS patients feel included.

This is a celebration of the many different life stories and experiences who find support, encouragement, and recognition through our efforts.

This is a vote of confidence in the scientists and researchers whose life’s work is understanding, treating, and one day curing this disease.

To see how FD/MAS Alliance is re-introducing itself to the world, explore our newly redesigned website. It won’t disappoint you, we promise.

Thank you for remaining the heart and soul of the new FD/MAS Alliance. You are a bright spot in this world!

With excitement and gratitude,

Lauren Ruotolo
President, FD/MAS Alliance

For Patients

For Researchers/ Clinicians

Latest

News

FD/MAS Alliance Leadership enhanced!

FD/MAS Alliance is thrilled to welcome four new leaders as well as a familiar face to our Board. The people who lend their time and talent to the FD/MAS Alliance become the main drivers of our activities and initiatives. They plan webinars, patient conferences, and support programs. They build relationships with researchers, oversee our patient […]

What’s your life motto?

What’s your life motto? Mine is #KEEPGOING My name is Adrianna, but my friends call me Anna. I am from Columbus, Ohio, and the oldest of four kids. We are a super close family. We pray a lot and value our faith, and it is central to how we see hope in fighting a […]

I remember happily playing soccer, my dad remembers his son limping. A lot.

William Romero was just four years old when he was diagnosed with polyostotic fibrous dysplasia (FD). “As a child, I did not realize any of my symptoms other than the fact that I walked funny, but as I reached puberty, I started to feel more of the pain associated with FD.” But aches and pains […]

Join Our

Community

Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with this diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.