Let's advance FD/MAS Research!

Team FD/MAS Rides Again

In seven years, Team FD/MAS has raised over $900,000 for Fibrous Dysplasia/McCune-Albright Syndrome research in partnership with the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community.

This peer-to-peer fundraiser is our search for a cure. It is the most direct way for the FD/MAS community to ask the most pressing scientific questions and fund the most promising therapeutic possibilities for a treatment. Team FD/MAS research fundraising is focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

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Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with their Fibrous Dysplasia/McCune-Albright Syndrome diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.


Final Day for Team FD/MAS Fundraising!

This is the final deadline for collecing ALL Team FD/MAS fundraising. The money you raise will set the course for FD/MAS focused research for 2023. Every dollar raised can make a real difference!

International Consortium for FD/MAS Launch Meeting

Researchers, clinicians and advocates are invited to the International Consortium for FD/MAS Launch Meeting.

Rehabilitation for Daily Life Function for Persons with FD/MAS

Join Dr. Scott Paul of the NIH and FD/MAS advocate Tiffany Meyer for a discussion of rehabilitation medicine and FD/MAS. The program will be streamed live to our Facebook page on August 19th at 12:00 EDT. Register to submit your questions ahead of time.