Team FD/MAS. Rides Again.

Learn More About Team FD/MAS 2021

Turning Hope into Research

Team FD/MAS research grants are critical, especially for early career and early concept science. As Dr. Collins of the NIH (and acting Scientific Advisory Council Chair) summed it up: “Hope is a reasonable thing to have.”

Team FD/MAS is putting this disease community on a path towards treatment!

As of June 17, we have close to 200 gifts, totaling almost $115 K including pledges of $20K from a very generous family and a second family who has pledged to raise $50K. We had over 50 riders signed up to participate in the virtual event. Our goal is to raise $250,000, so we need as much help this year as possible.

Please help us keep the momentum going. Support Team FD/MAS!

Learn More About Team FD/MAS 2021

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THANK YOU to all who support TEAM FD/MAS

We are so grateful to the FD/MAS community, donors, and riders for the Annual Million Dollar Bike Ride sponsored by Penn Medicine Orphan Disease Center for supporting 2021 Team FD/MAS! These gifts and registration fees directly fund FD/MAS research grants and support FD/MAS Alliance’s mission to advocate for research for evidence-based treatments for those living […]

A Message from Lauren Foster, Patient Advocate

I stand by Team FD/MAS and here’s why: WE matter. Our health matters. Some people don’t realize that if we donate the price of a meal at McDonald’s, we help find a cure. As an FD/MAS patient, I’ve struggled with this disease every single day of my life, as I know so many of you […]

How close are we to developing a drug to treat FD/MAS?

How close are we to finding a treatment for FD/MAS? An audience member posed this question in a recent update from 4 researchers funded by Team FD/MAS, and the answer? It depends. Because of your generosity, the last few years have been a real breakthrough for FD/MAS. Team FD/MAS has been partnering with the […]

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Community

Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with this diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.