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Fibrous Dysplasia and McCune-Albright Syndrome

Fibrous Dysplasia Foundation is now The FD/MAS Alliance.

A message from Lauren Ruotolo, President of the FD/MAS Alliance

Welcome to the new FD/MAS, a brand new place for all patients, caregivers and scientists. As a McCune Albright’s Syndrome patient, let me assure you that this is much more than a name change, this is time to represent our entire community. It’s a recognition that expands the breadth and depth of our community to make sure everyone who identifies as FD and/or MAS patients feel included.

This is a celebration of the many different life stories and experiences who find support, encouragement, and recognition through our efforts.

This is a vote of confidence in the scientists and researchers whose life’s work is understanding, treating, and one day curing this disease.

To see how FD/MAS Alliance is re-introducing itself to the world, explore our newly redesigned website. It won’t disappoint you, we promise.

Thank you for remaining the heart and soul of the new FD/MAS Alliance. You are a bright spot in this world!

With excitement and gratitude,

Lauren Ruotolo
President, FD/MAS Alliance

For Patients

For Researchers/ Clinicians

Latest

News

Spotlight on Michael Collins, MD

Dr. Michael Collins is not just a champion of hope, he is a champion of action. As a globally renowned expert in the clinical care and treatment of fibrous dysplasia and McCune-Albright syndrome (FD/MAS), Dr. Collins has been a driving force for the FD/MAS patient community and for the Fibrous Dysplasia Foundation (FDF) since the […]

Brighten the Corner Where you Stand: Remembering Ann Molitor

In 1954, Ann Molitor found herself living alone in Seattle. Her first marriage had come to an end, and she was starting again on her own. To cheer herself up, she would light candles for her dinner table each night, even though she ate simply and alone. But soon, Ann began to notice that her […]

Association MASFD Gives $60K Research Gift with Support from FDF

Washington DC (September 2020) Fibrous Dysplasia Foundation’s collaboration with Association MASFD results in funding a study to understand the central nervous system manifestations of McCune-Albright Syndrome The Fibrous Dysplasia Foundation (FDF) is proud to highlight the Association MASFD’s $60,000 donation to a globally renowned University of Iowa neuroscientist, Dr. Ted Abel. Dr. Abel is the […]

Join Our

Community

Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with this diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.