FD/MAS Alliance to Everyone

In July 2021 FD/MAS Alliance will launch a monthly webinar series, live-streamed and available for free. Topics will range from medical education to more specific research updates, and will also include social topics of particular interest to the community.

We are especially grateful to IONIS for sponsoring this series, and send our thanks to all those individuals and organizations that support the critical, ongoing educational work of the FD/MAS Alliance.

Our first topic will be FD/MAS 101, a crash course in understanding and managing fibrous dysplasia and McCune-Albright syndrome (FD/MAS). This session will be led by renowned expert Dr. Michael Collins of the NIH and hosted by FD/MAS caregiver Melissa Pacilio. Join us on July 29th at 12:00 Eastern for the live session, streamed via our Facebook page and accessible whether or not you have a Facebook account.

 

To register or submit a question ahead of time, fill out our survey (all questions optional!).

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Community

Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with this diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.

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