A message from Lauren Ruotolo, President of the FD/MAS Alliance
Welcome to the new FD/MAS, a brand new place for all patients, caregivers and scientists. As a McCune Albright’s Syndrome patient, let me assure you that this is much more than a name change, this is time to represent our entire community. It’s a recognition that expands the breadth and depth of our community to make sure everyone who identifies as FD and/or MAS patients feel included.
This is a celebration of the many different life stories and experiences who find support, encouragement, and recognition through our efforts.
This is a vote of confidence in the scientists and researchers whose life’s work is understanding, treating, and one day curing this disease.
To see how FD/MAS Alliance is re-introducing itself to the world, explore our newly redesigned website. It won’t disappoint you, we promise.
Thank you for remaining the heart and soul of the new FD/MAS Alliance. You are a bright spot in this world!
With excitement and gratitude,
President, FD/MAS Alliance