FD/MAS Community Connects

FD/MAS Alliance launched a monthly webinar series, live-streamed and available for free in July 2021. Topics range from medical education to more specific research updates, and also include social topics of particular interest to the community.

We are especially grateful to IONIS, Ultragenyx, and our Charlie’s Angels giving circle for supporting this series. This critical, ongoing educational work would not be possible without our generous supporters.

Our September discussion will focus on Craniofacial Care. Click here to learn more.

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Community

Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with this diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.

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