Let's advance FD/MAS Research!

Team FD/MAS Rides Again

In seven years, Team FD/MAS has raised over $900,000 for Fibrous Dysplasia/McCune-Albright Syndrome research in partnership with the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community.

This peer-to-peer fundraiser is our search for a cure. It is the most direct way for the FD/MAS community to ask the most pressing scientific questions and fund the most promising therapeutic possibilities for a treatment. Team FD/MAS research fundraising is focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

Learn more about Team FD/MAS

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For Patients

For Researchers/ Clinicians

Latest

News

Research Article Emphasizes the Importance of Screening for Patients with FD/MAS for Pain

Pain in people with FD/MAS is common and can come and go. While not every person with FD/MAS experiences FD-related pain, every person who seeks help for FD/MAS pain should be taken seriously. Among many clinicians, there has been a longstanding and misinformed belief that FD/MAS does not cause pain. This idea has been refuted, […]

Miss (and Ms.) Amazing

Meet Ellasyn Berry of Little Chute, Wisconsin. At 13 years old, she is a rollercoaster rider, a swimmer, a Bath & Body Works shopper, a future anesthesiologist, and living every day with McCune-Albright syndrome (MAS) and Polyostotic Fibrous Dysplasia (PFD). Ellasyn is surrounded by family that she lovingly describes as “chaotic.” Mom (Leah) works for […]

Mouse Models, Research, and Hope

We had the pleasure of interviewing Yingzi Yang, Ph.D., Associate Dean for Research and Professor of Developmental Biology at the Harvard School of Dental Medicine. Dr. Yang is a leading scientist/researcher in skeletal biology and genetic disease studies and the recipient of a Team FD/MAS Million Dollar Bike Ride award. Dr. Yang received her B.S. […]

Join Our

Community

Often people reach out to the FD/MAS Alliance because they feel isolated and overwhelmed with the challenges, decisions, and emotions that come with their Fibrous Dysplasia/McCune-Albright Syndrome diagnosis. As a community, we go farther faster as we support each other in the journey. You are not alone.

FD/MAS Alliance relies on people just like you to fulfill our mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.

Events

Final Day for Team FD/MAS Fundraising!

This is the final deadline for collecing ALL Team FD/MAS fundraising. The money you raise will set the course for FD/MAS focused research for 2023. Every dollar raised can make a real difference!

International Consortium for FD/MAS Launch Meeting

Researchers, clinicians and advocates are invited to the International Consortium for FD/MAS Launch Meeting.

Rehabilitation for Daily Life Function for Persons with FD/MAS

Join Dr. Scott Paul of the NIH and FD/MAS advocate Tiffany Meyer for a discussion of rehabilitation medicine and FD/MAS. The program will be streamed live to our Facebook page on August 19th at 12:00 EDT. Register to submit your questions ahead of time.