Help Plan the 2023 FD/MAS Community Conference


September 8th to September 11th, 2023

FD/MAS Alliance is ready to plan for our in-person FD/MAS community conference near the NIH (Bethesda) to coincide with a meeting of the International Consortium for FD/MAS and recognition from the NICDR for 25 years of  FD/MAS research.

It is very important to us that this conference is meaningful for the FD/MAS community; thus, we seek your participation and feedback!  Please share your thoughts and ideas via this form.

We’d also like to invite volunteers to join our planning committee.  We are convening a planning committee chaired by a board director to help with the program, logistics, and fundraising.  If you would like to volunteer, please remember to share your name and email in this form.

We look forward to seeing you in 2023!

Share your Feedback and Volunteer

Do you plan to attend the in-person event?
I'd like to help fundraise for this event
This conference will be planned by a committee of board members, staff, organizational advisors, and community members. If you are interested in volunteering for the planning committee, please include your name and email on this form.
Are you interested in helping us plan this conference?
Name (required for planning committee volunteers)
We're collecting demographics to improve our programming and expand our reach. These questions are helpful, though not required.
Are you diagnosed with FD or MAS?
Are you the caregiver for a minor who has FD/MAS?
What is your gender

How do you identify your ethnicity? (Select all that apply)
This field is for validation purposes and should be left unchanged.