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2023 Conference Resources

Home2023 Conference Resources – ICFDMAS Research Sessions

The 2023 FD/MAS Community Conference was an impactful weekend of education, connection, and collaborative research. Sunday sessions were focused on FD/MAS research and the first, in-person meeting of the International Consortium for Fibrous Dysplasia, McCune-Albright syndrome (ICFDMAS)

Please enjoy these recordings from those research sessions:

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State of FD/MAS Research

The State of FD/MAS Research with Dr. Natasha Appelman Dijkstra 

Tocilucimab: Summary of the TociDys Study

 Tocilucimab: Summary of the TociDys Study  – Dr. Roland Chapurlat

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Bisphosphonates: Update from the ProFiDys Study

 Bisphosphonates: Update from the ProFiDys Study –  Dr. Roland Chapurlat

Advances in Craniofacial Surgery

Advances in Craniofacial Surgery – Dr. Kristen Pan

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A More Comprehensive Quality of Life Study

A More Comprehensive Appreciation of the Quality of Life in FD/MAS:
A Study Combining Quantitative and Qualitative Approaches – Dr. Juliette Jousse

Updates on the NIH trials

  Updates on the NIH trials Denosumab/Burosumab – Dr. Alison Boyce

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Denosumab: Summary of the LUMC studies

Denosumab: Summary of the LUMC studies and The DeFiD trial –Dr. Natasha Appelman-Dijkstra

Registries

Registries: RUDY, FD/MAS Patient Registry, EuRR-Bone – Dr. Kassim Javaid, Dr. Andrea Burke &  Dr. Natasha Appelman-Dijkstra

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Clinical Roundtable

Clinical Research Roundtable

Insights from FD/MAS Mouse Model

Insights from FD/MAS Mouse Model – Dr. Biagio Palmisano

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The Role of Hippo Signaling Alteration

The Role of Hippo Signaling Alteration in the Pathogenesis of FD – Dr. Yingzi Yang

Salt Inducible Kinases

Salt Inducible Kinases in FD Pathogenesis – Dr. Marc Wein

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Treatment for FD: RANKL and Beyond

Treatment for Fibrous Dysplasia: RANKL and Beyond – Dr. Xuefeng Zhao

Insights in FD/MAS Bone Pain

Insights in FD/MAS Bone Pain – Dr. Chelsea Hopkins

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Assessing Putative Mammalian Adenylyl Cyclase Inhibitors

Assessing Putative Mammalian Adenylyl Cyclase Inhibitors – Dr. Charles Hoffman

Applying Single Cell Transcriptomics to FD of the Bone

Applying Single Cell Transcriptomics to FD of the Bone – Dr. Fernando Fierro & Dr. Kelly Wentworth

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Osteoblastic Deletion Of Prkar1a

Osteoblastic Deletion Of Prkar1a Subunit Causes Severe Bone Pathology with a High Bone Turnover in Mice –  Dr. Carole Le Henaff 

 

Special Thanks to:

The Board of Directors for their leadership and vision
The Conference Planning Committee for their thoughtful guidance and hard work
The Medical and Scientific Advisory Councils for their expertise and generosity
The Patient Advisory Council for their commitment and creativity
To Drs. Michael Collins and Alison Boyce for their dedication and patience
To the ICFDMAS board for expanding the field and encouraging progress
To all those who attended the conference and made it the meaningful weekend that it was.

Thanks to our Sponsors