News

Faces of FD/MAS – 2024 Photo Sharing

February 20th-27th is FD/MAS Global Awareness Week. FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2024 we celebrate the fifth annual FD/MAS Global Awareness Week with the theme #FacesofFDMAS

#Faces of FD/MAS

FD/MAS is a complicated and rare disease. Those diagnosed with the disease and their caregivers often feel overwhelmed and alone. Faces of FD/MAS hopes to give comfort and community to those in the FD/MAS community by demonstrating that they are not alone and that those with FD/MAS can lead full, vibrant, and successful lives. Follow us on Facebook and Instagram to see FD/MAS factoids and meet FD/MAS community members!

Share your photo!

We’re inviting all those in the FD/MAS community (those diagnosed and family members of the diagnosed, as well as friends, clinicians, and researchers) to submit a photo and answer a few short questions. We’ll share these images and quotes during FD/MAS Global Awareness Week.

If you have questions, you can reach out to us at info@fibrousdysplasia.org

Name
Send us a picture (or compilation of photos)! It does NOT have to be your face! We love seeing your personality, interests, and adventures and sharing those with the rest of the FD/MAS community!
Max. file size: 256 MB.
How would you introduce yourself to the FD/MAS community? Are you diagnosed with FD/MAS? A caregiver? a sibling? a researcher? Are you a dancer? a book worm? etc.
Share a recent triumph or win!
Share a goal for the future or a challenge ahead of you!
Release Form(Required)
I hereby grant to FD/MAS Alliance permission to the rights of my image and likeness recorded on audio, video, or still image without payment or any other consideration. I understand that my image may be edited, copied, exhibited, published or distributed and waive the right to inspect or approve the finished product wherein my likeness appears. Additionally, I waive any right to royalties or other compensation arising or related to the use of my image or recording. I also understand that this material may be used in diverse settings within an unrestricted geographic area. By checking the box on this release I understand this permission signifies that photographic or video recordings of me may be electronically displayed via the Internet . There is no time limit on the validity of this release nor is there any geographic limitation on where these materials may be distributed. By checking this box I acknowledge that I have completely read and fully understand the above release and agree to be bound thereby. I hereby affirm that I am an adult and release any and all claims against any person or organization utilizing this material.
This field is for validation purposes and should be left unchanged.