10 results for: million dollar bike ride

Support the Million Dollar Bike Ride

Research News

All donations via check to Team FD for the Million Dollar Bike Ride should be made payable to the Fibrous Dysplasia Foundation, with the gift memo “UPenn Million Dollar Bike Ride 2020”. Mailed gifts will only be marked anonymous, or attributed to specific fundraiser, if the check is accompanied with a note to that effect. […]

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So, what’s the deal with this Million Dollar Bike Ride?

Foundation News Research News

For the last four years the FD/MAS community has been REALLY excited about a particular bike ride in Philadelphia. It’s not that we’re super cyclists, it’s just that this event happens to be the biggest driver of private FD/MAS research funding in the world. Through the Million Dollar Bike Ride, Team Captain Cindi Brandt Levin […]

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Support the Million Dollar Bike Ride

Foundation News Patient Spotlight

Cindi and Fred Levin are captaining a team to make the Fibrous Dysplasia Foundation eligible for significant amounts of research funds! They write: We are asking you to join us in the Million Dollar Bike Ride on May 9th as a cyclist, fundraiser or donator to the Fibrous Dysplasia Team.  We are captaining this team […]

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Letter from the Executive Director: Adrienne McBride

Constant Contact

Although 2020 has been a challenging year, we wish you all a peaceful, safe and happy holiday season! Because of your continued support during this turbulent year, your community, the FD/MAS community is moving forward. Here are some highlights. Fibrous Dysplasia Foundation is now The FD/MAS Alliance.  We’ve refocused our mission,  rebranded our trade name, […]

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FDF and UPenn ODC Award Four FD/MAS Research Grants

Foundation News Research News

The Fibrous Dysplasia Foundation and UPenn Orphan Disease Center are pleased to announce the winners of the 2018 Million Dollar Bike Ride research grants. These seed grants will fund new, innovative research proposals to investigate fibrous dysplasia and McCune-Albright syndrome (FD/MAS).

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FD/MAS Research Grants Announced

Research News

FD/MAS Alliance is thrilled to share that two FD/MAS research grants have been awarded from the 2022 Million Dollar Bike Ride!  Last spring, Team FD/MAS raised $160,000 for FD/MAS-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific Advisory Council and the […]

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Drs. Alison Boyce (left) and Luis Fernandez de Casto (right)

Fibrous Dysplasia Research Gains More Scientific Attention at Bone Mineral Research Meeting

Uncategorized

This September, FD/MAS Alliance sent Executive Director Adrienne McBride, to attend the American Society of Bone and Mineral Research (ASBMR) meeting, which Dr. Michael Collins called “a real triumph for the fibrous dysplasia/McCune-Albright syndrome (FD/MAS) research community.”  Drs. Michael Collins, Acting Chair of the FD/MAS Alliance Scientific Advisory Council (SAC), and Alison Boyce, Chair of […]

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$160K FD/MAS Research Funding Available

Foundation News Research News

We are delighted to share the Request for Applications for this year’s Team FD/MAS Million Dollar Bike Ride grants:   Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare multisystem disease caused by somatic mutations in GNAS. The mutation results in constitutive activation of the Gsα cAMP signaling pathway. Skeletal manifestations include bone pain, fractures, deformity, and […]

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Mouse Models, Research, and Hope

Research News

We had the pleasure of interviewing Yingzi Yang, Ph.D., Associate Dean for Research and Professor of Developmental Biology at the Harvard School of Dental Medicine. Dr. Yang is a leading scientist/researcher in skeletal biology and genetic disease studies and the recipient of a Team FD/MAS Million Dollar Bike Ride award. Dr. Yang received her B.S. […]

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2021 Team FD/MAS Research Grants Announced

Foundation News Research News

FD/MAS Alliance is thrilled to share that three FD/MAS research grants have been awarded from the 2021 Million Dollar Bike Ride! Last spring, Team FD/MAS raised $161,373 for fibrous dysplasia, McCune-Albright syndrome (FD/MAS)-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific […]

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