FD/MAS Research Funding Opportunity & Webinar – PRMRP Information
Research NewsThe FD/MAS Alliance is alerting you to a 2023 funding opportunity: Fibrous dysplasia/McCune-Albright Syndrome was again named as one of the disease topic areas eligible for dedicated Department of Defense (DOD) research funding through the Peer Reviewed Medical Research Program (PRMRP). The mission of the PRMRP is to encourage, identify, select, and manage medical research […]
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FD/MAS Federal Research Funding Initiative
Advocacy News Research NewsThe FD/MAS community of researchers and advocates continues forward with the Department of Defense Funding Opportunity One of the most significant initiatives that FD/MAS Alliance continues to advance is the Peer Reviewed Medical Research Program (PRMRP). The PRMRP is a major research opportunity that our team of advocates has unlocked for FD/MAS researchers through the […]
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Researchers and Advocates Move Forward with Department of Defense Funding
Advocacy News Foundation News Research NewsOne of the biggest initiatives that FDF is working on right now is the Peer Reviewed Medical Research Program (PRMRP). The PRMRP is a huge research opportunity that our team of advocates have unlocked for FD/MAS researchers through the US Department of Defense’s Congressionally Directed Medical Research Program (DOD CDMRP). Thanks to the tireless efforts […]
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Letter from the Executive Director: Adrienne McBride
Constant ContactAlthough 2020 has been a challenging year, we wish you all a peaceful, safe and happy holiday season! Because of your continued support during this turbulent year, your community, the FD/MAS community is moving forward. Here are some highlights. Fibrous Dysplasia Foundation is now The FD/MAS Alliance. We’ve refocused our mission, rebranded our trade name, […]
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Fibrous Dysplasia Included in the Department of Defense Appropriations Bill
Advocacy News Foundation News Research NewsWashington DC (December 20, 2019) Fibrous Dysplasia Included in the Department of Defense Peer-Reviewed Medical Research Program We are grateful for the support of the Chairs and Ranking Members of the Appropriations Committee and the Defense Appropriations Subcommittee, the individual members on the Subcommittee and the Senators, as well as their staff. Thanks to their […]
Click to Read A Seat at the Federal Research Table
Advocacy News Foundation NewsWashington DC (October 18, 2019) Fibrous Dysplasia included the Department of Defense Peer-Reviewed Medical Research Program Thanks to our champion who sits on the Appropriations Committee, Senator Patty Murray (D- WA), Fibrous Dysplasia made it into the Senate DOD Appropriations Committee recommendations to the Secretary of the Department of Defense in conjunction with the US […]
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FDF launches a critical campaign for more research funds
Advocacy News Foundation NewsEvery year, during the week of Rare Disease Day, FD/MAS advocates and rare disease advocates from other communities gather on Capitol Hill in Washington. These advocates use this time to encourage lawmakers to support legislation that could help the rare disease community, including the OPEN ACT and NIH research funding. These programs are important to […]
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