A Message from Lauren Foster, Patient Advocate

I stand by Team FD/MAS and here’s why: WE matter. Our health matters. Some people don’t realize that if we donate the price of a meal at McDonald’s, we help find a cure. As an FD/MAS patient, I’ve struggled with this disease every single day of my life, as I know so many of you have too. 

Last year was hard; however, we raised over $66,000 for a critical research grant in the first-ever “virtual” Million Dollar Bike Ride (MDBR). We will do better this year because that’s what FD/MAS Warriors do. We have to. 

If 2020 taught us anything about scientific research in the battle against COVID, it’s that medical treatments ARE POSSIBLE, and it can happen for FD/MAS patients too if we continue to fight for progress. Giving up is not an option. 

We need to show that we are a united community and that we want treatments and a cure. We need to show clinicians, researchers, and the industry that we–the patient community–are a team and that we are ready.

How do we do that? By getting involved and investing in our future for a treatment and a possible cure. We are the first step in receiving a better future. 

My goal is to have 100 of my fellow warriors donate $5, $10, or whatever they can. Our numbers make a difference in how and why researchers want to give us a chance at a better life. My pledge is $100 to start, the more we raise–the higher our donation! Click here to donate.

As the people affected by this rare disease, WE must be the ones to fight this battle. How can anyone stand behind us if we aren’t willing to unite and fight for our own cure and future? The Million Dollar Bike Ride is one of the easiest ways to do this. Can I count on you?

Without awareness and fundraising, there’s no possibility for a cure. 

Love,
Lauren Foster

Graphic Designer, Mom, FD/MAS Board Member, and FD/MAS Warrior
Everyone who donates on my page will be put in a drawing for an FD/MAS Alliance Hoodie.