News

An FD/MAS Community Webinar Series

In July 2021, FD/MAS Alliance launched an ongoing monthly webinar series, live-streamed and available for free. Topics range from medical education to more specific research updates and include social topics of particular interest to the community. 

We are especially grateful to IONIS, Ultragenyx, and our Charlie’s Angels monthly giving circle for supporting this series. We thank all those individuals and organizations that support the critical, ongoing educational work of the FD/MAS Alliance.

 Fibrous Dysplasia/McCune Albright after 40 years AnnouncmentOur November webinar will focus on aging with fibrous dysplasia/McCune-Albright syndrome (FD/MAS): A live discussion with FD/MAS Alliance Medical Advisor, Dr. Edward Hsiao, UCSF.  Join us on November 8 at 12:00 E for the session, streamed live via our Facebook page and accessible whether or not you have a Facebook account. You may register and submit questions ahead of time via this link.

Previous webinars include:

FD/MAS 101, a crash course in understanding and managing fibrous dysplasia and McCune-Albright syndrome (FD/MAS). This session will be led by renowned expert Dr. Michael Collins of the NIH and hosted by FD/MAS caregiver Melissa Pacilio. You can find the full recording, including the Q&A section here. 

Bone Pain and FD/MAS: a discussion of FD/MAS and the very common challenge of pain. This session will be led by our Medical Advisory Chair, Dr. Alison Boyce of the NIH, and hosted by founding board member Wendy Daubel Thompson. You can find the full recording, including the Q&A section here. 

Craniofacial Care: A live discussion with FD/MAS Alliance Medical Advisor, Dr. Andrea Burke of University of Washington School of Dentistry.  You can access the full recording, including the Q&A section here. 

Surgical Management of FD: a live discussion with FD/MAS Medical Advisor, Dr. Jason Malone of Nemours Children’s Hospital of Orlando and FD/MAS Caregiver, Darci Christner. You can access the full recording, including the Q&A section here.