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HomeBlogFoundation NewsTreatment NewsAn FD/MAS Community Webinar Series

An FD/MAS Community Webinar Series

FD/MAS Alliance launched an ongoing monthly webinar series, live-streamed and available for free. Topics range from medical education to more specific research updates and include social topics of particular interest to the community. 

We are incredibly grateful to IONIS, Ultragenyx, and our Charlie’s Angels monthly giving circle for supporting this series. We thank all those individuals and organizations that support the critical, ongoing educational work of the FD/MAS Alliance.

Our December 2021 webinar is Fibrous Dysplasia/McCune-Albright Syndrome (FD/MAS) and Reproductive Health: A Live Discussion with Dr. Veronica Gomez-Lobo, NIH. 

Join us on December 16th at noon E for the session, streamed live via our Facebook page and accessible whether or not you have a Facebook account. Register and submit questions ahead of time via this link.

WEBINARS

FD/MAS 101: a crash course in understanding and managing fibrous dysplasia and McCune-Albright syndrome (FD/MAS). This session is led by renowned expert Dr. Michael Collins, NIH, and hosted by FD/MAS caregiver Melissa Pacilio. Find the full recording, including the Q&A section, here. 

Bone Pain and FD/MAS: a discussion of FD/MAS and the very common challenge of pain. This session is led by our Medical Advisory Chair, Dr. Alison Boyce, NIH, and hosted by founding board member Wendy Daubel Thompson. Find the full recording, including the Q&A section, here. 

Craniofacial Care: a discussion with FD/MAS Alliance Medical Advisor, Dr. Andrea Burke of University of Washington School of Dentistry.  FIND the full recording, including the Q&A section, here. 

Surgical Management of FD: a discussion with FD/MAS Medical Advisor, Dr. Jason Malone of Nemours Children’s Hospital of Orlando, and FD/MAS Caregiver, Darci Christner. Find the full recording, including the Q&A section, here.

FD/MAS Beyond 40: a discussion with FD/MAS Alliance Medical Advisor, Dr. Edward Hsiao, UCSF, with FD/MAS advocate Shelley Hebert. Find the full recording, including the Q&A section, here.