Announcing our 2025-2027 Strategic Plan

I am excited to share our 2025-2027 Strategic Plan. This plan is the result of careful analysis, collaborative discussions, and a commitment to our mission of advancing research, providing education, and channeling the voices of individuals and caregivers with FD/MAS.

Key pillars include:

• Diversifying Patient Support and Education
• Raising Awareness of FD/MAS and the Alliance
• Strengthening Organizational Capacity

This plan is a living framework that will guide our daily decisions and long-term investments.

Over the coming weeks, we will send out a series of surveys asking about the future of research, community support, and our 2026 conference. We hope you will share your feedback to amplify your experience and priorities.

Thank you to the Board volunteers who dedicated over a year to lead us to this plan: Justin Healy, Anne Corvelle, Nikki Deeley, Chris Guest, Eric Liao, and Carmel Shemmesh-Rafalowsky.

We are on a path to a future where everyone affected by FD/MAS can thrive, thanks to our dedicated Board, advisors, and you.

Let’s do this!

Adrienne McBride
Executive Director
FD/MAS Alliance