News

Lauren Foster Headshot

A Message from Lauren Foster, Patient Advocate

Advocacy News Constant Contact Foundation News Uncategorized

I stand by Team FD/MAS and here’s why: WE matter. Our health matters. Some people don’t realize that if we donate the price of a meal at McDonald’s, we help find a cure. As an FD/MAS patient, I’ve struggled with this disease every single day of my life, as I know so many of you […]

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FD/MAS Alliance Leadership enhanced!

Constant Contact

FD/MAS Alliance is thrilled to welcome four new leaders as well as a familiar face to our Board. The people who lend their time and talent to the FD/MAS Alliance become the main drivers of our activities and initiatives. They plan webinars, patient conferences, and support programs. They build relationships with researchers, oversee our patient […]

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A Grateful Farewell to Two Significant Leaders

Constant Contact

FD/MAS Alliance has been immensely lucky to work with some truly inspiring leaders, and this fall, two of our most dedicated directors have stepped down from the board. We are indebted to and deeply grateful for the work that Sue Barnicle, as Treasurer, and Jack Kelly, as Secretary, have done for the FD/MAS Alliance. “It […]

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Letter from the Executive Director: Adrienne McBride

Constant Contact

Although 2020 has been a challenging year, we wish you all a peaceful, safe and happy holiday season! Because of your continued support during this turbulent year, your community, the FD/MAS community is moving forward. Here are some highlights. Fibrous Dysplasia Foundation is now The FD/MAS Alliance.  We’ve refocused our mission,  rebranded our trade name, […]

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Your gift changes lives

Constant Contact Foundation News

Giving Tuesday, December 2, 2020, was very exciting as the FD/MAS Alliance launched Charlie Harles’ Angels, our new monthly giving society, in honor of our founder, Charlie Harles! We’ve added new monthly donors to our ranks today, increasing our overall monthly giving pledges to over $1,800, which provides a foundation of support for people living […]

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