Join Us: Community Film Screening and Discussion
FDMAS Awareness Week Patient SpotlightPacing the Pool 24th February, 2022 – 7:30 PM EST In honor of FD/MAS Global Awareness Week, FD/MAS Alliance invites you to join us along with special guest, Richard Pace, for a community meet and greet and discussion. The discussion will begin with a screening of Pacing the Pool – a short documentary film focused […]
Click to Read
FD/MAS Awareness Week 2021
FDMAS Awareness WeekFebruary 20th-27th is FD/MAS Global Awareness Week. FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2021 we celebrate the second annual FD/MAS Global Awareness Week. Finding Your […]
Click to Read
Find Your Strength
FDMAS Awareness Week Patient SpotlightHello, I’m Sarah and I’m from Sacramento, California.I was diagnosed with McCune-Albright syndrome when I was about three years old. My mom was putting me down for bed and stroked my face when she noticed a strange lump on my jaw. From there, it took several doctors visits until I could get a CT to […]
Click to Read
Imagine a World without FD|MAS
FDMAS Awareness WeekFebruary 20th 2020 marks the beginning of the very first FD|MAS Global Awareness Week. We’re celebrating by asking patients, caregivers, and advocates to share their vision for a world without FD|MAS. What would your life look like if this horrible disease were cured? Would you… Have perfect attendance at school? Be a college football star? […]
Click to Read