News

Picture of left to right: Cindi Brandt Levin, Anne Corvelle, Tovah Burstein and Sarah Healy at the Million Dollar Bike Ride

Team FD/MAS 2024 Update!

Research News

UPDATED JUNE 18th 2024: We are excited to share that we’ve received over 150 donations for Team FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR). Thanks to a $30,000 match from UPENN and donations from the Association MAS/FD in France, we’ve already raised over $95,000. THANK YOU! But we’re not […]

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Team FD/MAS Dispatch!

Foundation News Research News

Following our May 21st $20 Tuesday rally, Team FD/MAS has exciting news to report! We have unlocked the UPenn match gift of $30,000!  Major thanks go to Association MAS/FD of France, led by Aurelie Lagneau who made a generous pledge that pushed Team FD/MAS over our first benchmark goal. Thanks to the 3 fundraisers, 15 […]

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Team FD/MAS Research Update 2024

Research News

For ten years now, Team FD/MAS has been dedicated to funding promising research projects through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. During that time, the community has supported 20 research projects to advance FD/MAS research and, ultimately, find a treatment or cure for FD/MAS. In 2021, Team FD/MAS led by Team Captain Cindi Brandt Levin and […]

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Team FD/MAS 2023 Research Grants Announced

Research News Uncategorized

FD/MAS Alliance is thrilled to share that three fibrous dysplasia, McCune-Albright syndrome (FD/MAS) research grants have been awarded from Team FD/MAS’s 2023 Million Dollar Bike Ride efforts! Last spring, Team FD/MAS raised $161,620 for FD/MAS-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of nine applications by the FD/MAS […]

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NIDCR Honors 25 years of FD/MAS Research

Research News Uncategorized

Immediately following the FD/MAS Community Conference, NIDCR hosted a symposium to celebrate the institute’s 25-year legacy of research to understand and treat fibrous dysplasia/McCune-Albright syndrome (FD/MAS) as part of its 75th anniversary. The event featured Nobel Laureate Brian Kobilka, M.D., who won the 2012 Nobel Prize in Chemistry for his work on G-protein-coupled receptors. The […]

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FD/MAS Research Funding Available: Million Dollar Bike Ride (MDBR) Pilot Grant Program

Foundation News Research News

We are delighted to share the Request for Applications (RFA) for the 2023 Team FD/MAS MDBR Grants Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare multisystem disease caused by somatic mutations in GNAS. The mutation results in constitutive activation of the Gsα cAMP signaling pathway. Skeletal manifestations include bone pain, fractures, deformity, and osteomalacia/rickets. Four grants […]

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2023 Million Dollar Bike Ride Success! Thanks to YOU!

Foundation News Research News Uncategorized

A total of $161,620 for fibrous Dysplasia/McCune-Albright syndrome (FD/MAS) research was raised and will fund up to 4 grants. TEAM FD/MAS was also the #1 fundraising team at the MDBR event sponsored by UPenn Orphan Disease Center. This achievement would not have been possible without you and the incredible support of the FD/MAS community. We […]

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Exciting Announcement: Researchers awarded a U.S. Department of Defense grant to fund a four-year study of Fibrous Dysplasia (FD)

Foundation News Research News

Here’s some exciting news to share with families, friends, and donors! Researchers at Harvard School of Dental Medicine (HSDM) and Massachusetts General Hospital (MGH) awarded a U.S. Department of Defense grant to fund a four-year study of Fibrous Dysplasia (FD) HSDM, and MGH will receive just over $3 million for this study. “This funding will […]

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CDMRP Glitz

FD/MAS Research Funding Opportunity & Webinar – PRMRP Information

Research News

The FD/MAS Alliance is alerting you to a 2023 funding opportunity: Fibrous dysplasia/McCune-Albright Syndrome was again named as one of the disease topic areas eligible for dedicated Department of Defense (DOD) research funding through the Peer Reviewed Medical Research Program (PRMRP).  The mission of the PRMRP is to encourage, identify, select, and manage medical research […]

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FD/MAS Research Grants Announced

Research News

FD/MAS Alliance is thrilled to share that two FD/MAS research grants have been awarded from the 2022 Million Dollar Bike Ride!  Last spring, Team FD/MAS raised $160,000 for FD/MAS-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific Advisory Council and the […]

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