News

Association MASFD Gives $60K Research Gift with Support from FDF

Foundation News Research News Uncategorized

Washington DC (September 2020) Fibrous Dysplasia Foundation’s collaboration with Association MASFD results in funding a study to understand the central nervous system manifestations of McCune-Albright Syndrome The Fibrous Dysplasia Foundation (FDF) is proud to highlight the Association MASFD’s $60,000 donation to a globally renowned University of Iowa neuroscientist, Dr. Ted Abel. Dr. Abel is the […]

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An Extensive Review of FD/MAS and a Notable Career Achievement for Two Leaders in the FD/MAS Research Community

Foundation News Research News

FDF recently added a new article to our collection, an especially exciting publication from two of the world’s most renowned experts on FD/MAS and leading figures on FDF’s Medical Advisory Council, Drs. Michael Collins and Alison Boyce.  “Fibrous Dysplasia/McCune-Albright Syndrome: A Rare, Mosaic Disease of Gα s Activation”, published in Endocrine Reviews in April of 2020 […]

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2018 Team FD Awardees: Spring 2020 Update

Foundation News Research News

The Fibrous Dysplasia Foundation (FDF) and the University of Pennsylvania Orphan Disease Center announced the four winners of the 2018 Million Dollar Bike Ride research grants in December 2018, and the awardees began their studies in early 2019. These important grants fund innovative research to investigate fibrous dysplasia/McCune-Albright syndrome (FD/MAS). Each investigator recently provided a […]

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A New Team FD/MAS, Same Focus on Research

Foundation News Research News

The year 2020 has felt different from 2019 in so many ways, but some important things have remained consistent. This year, just as in the last 5 years, Team FD/MAS will be awarding a research grant to an FD/MAS researcher through the UPenn Orphan Disease Center’s (ODC) Million Dollar Bike Ride. With thanks to Association […]

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Researchers and Advocates Move Forward with Department of Defense Funding

Advocacy News Foundation News Research News Uncategorized

One of the biggest initiatives that FDF is working on right now is the Peer Reviewed Medical Research Program (PRMRP). The PRMRP is a huge research opportunity that our team of advocates have unlocked for FD/MAS researchers through the US Department of Defense’s Congressionally Directed Medical Research Program (DOD CDMRP). Thanks to the tireless efforts […]

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FDF and UPenn ODC Award Two FD/MAS Research Grants

Foundation News Research News

The Fibrous Dysplasia Foundation and the University of Pennsylvania Orphan Disease Center are pleased to announce the winners of the 2019 Million Dollar Bike Ride research grants. These important seed grants pave the way for new, innovative research to investigate fibrous dysplasia and McCune-Albright syndrome (FD/MAS). This year’s awardees are: Dr. Yingzi Yang of the […]

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Fibrous Dysplasia Included in the Department of Defense Appropriations Bill

Advocacy News Foundation News Research News Uncategorized

Washington DC (December 20, 2019)  Fibrous Dysplasia Included in the Department of Defense Peer-Reviewed Medical Research Program We are grateful for the support of the Chairs and Ranking Members of the Appropriations Committee and the Defense Appropriations Subcommittee,  the individual members on the Subcommittee and the Senators, as well as their staff. Thanks to their […]

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The Physician Researcher and FD/MAS as a Spectrum

Foundation News Research News

Kelly Wentworth, M.D.is an assistant professor in the School of Medicine at the University of California, San Francisco and one of the four researchers to receive a Team FD Million Dollar Bike Ride research grant in 2018. Her project year is nearly done, and her work in FD/MAS will continue. Dr. Wentworth was recently awarded […]

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A Patient’s Roadmap to Curing A Rare Disease

Advocacy News Foundation News Research News

Report from the Global Genes Summit: With community, innovative treatments and cures happen! Having recently embraced my role as the new executive director of the Fibrous Dysplasia Foundation (FDF), I embarked on a steep learning curve.  Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a very complicated disease and the path to treatment can feel daunting. Luckily, […]

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Fostering Partnerships and Future Research in Florence

Foundation News Research News

An important part of  developing new and innovative FD/MAS research is networking with researchers that have similar interests. This is one of the reasons FDF and FD/MAS researchers attended the 4th Meeting of the International FD/MAS Consortium. This meeting takes place annually with the goal of building connections among FD/MAS researchers. This year’s meeting took […]

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