News

Team FD/MAS 2023 Research Grants Announced

Research News Uncategorized

FD/MAS Alliance is thrilled to share that three fibrous dysplasia, McCune-Albright syndrome (FD/MAS) research grants have been awarded from Team FD/MAS’s 2023 Million Dollar Bike Ride efforts! Last spring, Team FD/MAS raised $161,620 for FD/MAS-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of nine applications by the FD/MAS […]

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NIDCR Honors 25 years of FD/MAS Research

Research News Uncategorized

Immediately following the FD/MAS Community Conference, NIDCR hosted a symposium to celebrate the institute’s 25-year legacy of research to understand and treat fibrous dysplasia/McCune-Albright syndrome (FD/MAS) as part of its 75th anniversary. The event featured Nobel Laureate Brian Kobilka, M.D., who won the 2012 Nobel Prize in Chemistry for his work on G-protein-coupled receptors. The […]

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2023 Million Dollar Bike Ride Success! Thanks to YOU!

Foundation News Research News Uncategorized

A total of $161,620 for fibrous Dysplasia/McCune-Albright syndrome (FD/MAS) research was raised and will fund up to 4 grants. TEAM FD/MAS was also the #1 fundraising team at the MDBR event sponsored by UPenn Orphan Disease Center. This achievement would not have been possible without you and the incredible support of the FD/MAS community. We […]

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Faces of FD/MAS

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How do you explain a disease that is so complex, varying, and rare? Through stories. Through narrative context. By giving the experience a face.  About: Faces of FD/MAS is an FD/MAS Alliance video project envisioned and guided by the Patient Advisory Council (PAC). The project aims to capture the diverse experiences of those in the […]

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Becoming an Advocate for ELSA -Ensuring Lasting Smiles Act

Advocacy News Uncategorized

Hi, my name is Brittany Anderson. I had a tooth removed in 1997, when I was 13 years old, and the swelling never went down from the extraction. They then did a biopsy on the bone and I was diagnosed with a bone disease called fibrous dysplasia (FD). FD is a rare genetic disease that […]

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Drs. Alison Boyce (left) and Luis Fernandez de Casto (right)

Fibrous Dysplasia Research Gains More Scientific Attention at Bone Mineral Research Meeting

Uncategorized

This September, FD/MAS Alliance sent Executive Director Adrienne McBride, to attend the American Society of Bone and Mineral Research (ASBMR) meeting, which Dr. Michael Collins called “a real triumph for the fibrous dysplasia/McCune-Albright syndrome (FD/MAS) research community.”  Drs. Michael Collins, Acting Chair of the FD/MAS Alliance Scientific Advisory Council (SAC), and Alison Boyce, Chair of […]

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