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Faces of FD/MAS: Corey’s Story

Faces of FD/MAS is an FD/MAS Alliance video project envisioned and guided by the Patient Advisory Council (PAC). The project aims to capture the diverse experiences of those in the fibrous dysplasia, McCune-Albright syndrome (FD/MAS) community. Videos will be released throughout 2024 in celebration of FD/MAS Alliance’s 20th Anniversary.

In honor of Mother’s Day and our annual campaign for FD/MAS research, we’re sharing the story of Corey Wronski. Corey is a single parent, a professor, and an FD/MAS patient. Right now, she spends a lot of time chasing after her young son, but she worries about how long she’ll be able to keep up. There are so many interesting and wonderful things about Corey that have nothing to do with FD/MAS, her diagnosis should not be her limiting factor.

Corey participated in the Faces of FD/MAS project while attending the 2023 FD/MAS Community Conference.

We’re honored to share her story

“Someday you’ll be on the other side of this particular crisis. Life on that side may not look like what you expect it to look like, but then you’re transformed into something beautiful.”

FD/MAS is a complicated and rare disease. Those diagnosed with the disease and their caregivers often feel overwhelmed and alone. Faces of FD/MAS hopes to give comfort and community to those in the FD/MAS community by demonstrating that they are not alone and that those with FD/MAS can lead full, vibrant, and successful lives.

The project simultaneously illustrates the great need for improved understanding and treatment outcomes and the urgency for research and quality-of-life advancements.

The project simultaneously illustrates the great need for improved understanding and treatment outcomes and the urgency for research and quality-of-life advancements.

To join us and support our mission, give today.