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Faces of FD/MAS: Dennis’s Story

Faces of FD/MAS is an FD/MAS Alliance video project envisioned and guided by the Patient Advisory Council (PAC). The project aims to capture the diverse experiences of those in the fibrous dysplasia, McCune-Albright syndrome (FD/MAS) community. Videos will be released throughout 2024 in celebration of FD/MAS Alliance’s 20th Anniversary.

In celebration of FD/MAS Global Awareness Week, we’re pleased to share Dennis’s story. Anyone who meets him knows that Dennis brings joy and optimism into every room he enters. Dennis participated in the Faces of FD/MAS project while attending the 2023 FD/MAS Community Conference.

We’re thrilled to share his story for FD/MAS Global Awareness Week

“When I’m not feeling good, the game I like to play is to pick out the grumpiest person I can find, and I’m gonna make them smile. The endorphins you release make you feel better. It’s cheaper than a drugstore, and a lot more fun too!” – Dennis Thomsen.

FD/MAS is a complicated and rare disease. Those diagnosed with the disease and their caregivers often feel overwhelmed and alone. Faces of FD/MAS hopes to give comfort and community to those in the FD/MAS community by demonstrating that they are not alone and that those with FD/MAS can lead full, vibrant, and successful lives.

The project simultaneously illustrates the great need for improved understanding and treatment outcomes and the urgency for research and quality-of-life advancements.

To join us and support our mission, give today.