FD/MAS Alliance’s FY2024 Annual Report
We are thrilled to share our 2024 Annual Report. This has been an exciting year for the fibrous dysplasia, McCune-Albright syndrome (FD/MAS) community. You’ve helped us:
- Host an international FD/MAS conference that brought together individuals, caregivers, researchers, and clinicians to discuss real-world strategies for improving care and advancing research.
- Create a story library sharing the stories of people living with FD/MAS throughout the world. The Faces of FD/MAS video project captures our community’s diverse experiences.
- Catalyze research opportunities including revised treatment guidelines and a renewed opportunity for federal research funding to advance FD/MAS treatment.
Read about these initiatives and hear how the Atlantic Ocean unlocked Tyler Healy’s voice as an advocate in the full annual report. We hope you will feel proud of the way your engagement has moved the needle for all stakeholders in the FD/MAS community.