The FD/MAS Patient Registry Steering Committee reviews data use applications from researchers and helping establish guidelines for the FD/MAS Patient Registry. The steering committee includes doctors, researchers, and patients.
Carmel Shemmesh-Rafalowsky, Primary investigator
FD/MAS Alliance BOD Director
Alison Boyce, MD
Associate Research Physician
Skeletal Disorders and Mineral Homeostasis Section
National Institute of Dental and Craniofacial Research
National Institutes of Health
Andrea Burke, DMD, MD
Assistant Professor, Oral and Maxillofacial Surgery
School of Dentistry, University of Washington
Amanda Konradi, PhD
Associate Professor, Department of Sociology
Director, Gender and Sexuality Studies Minor
Loyola University, MD
Petra U
FD/MAS Community Member
