Financial Literacy 101: Understanding Federal Disability Benefits

FREQUENTLY ASKED QUESTIONS (FAQs)

The Federal Government offers two programs with monetary benefits for individuals with disabilities
who have little or no income or financial resources: Supplemental Security Income (SSI) and Social
Security Disability Insurance (SSDI).

The government also offers two medical benefit programs: Medicaid, which corresponds with SSI; and Medicare, which corresponds with SSDI. There are also benefits related to food and housing available through the Social Security Administration. We encourage you to contact your state social security office if you believe you are entitled to disability benefits through either the Federal Government or your state.

DISCLAIMER: These FAQs are intended to direct you to the best programs for your individual situation. For complete responses, you should contact the Social Security Administration, preferably your local office, or an expert.

Basics

What is FD/MAS?

Fibrous Dysplasia and McCune-Albright Syndrome are referred to as FD/MAS.  These two conditions are linked because they are caused by the same genetic mutation.  But FD affects the bones only, while MAS affects other tissue in the body.  A person with FD/MAS may have FD or MAS or both, depending on how the genetic mutation affects them.  The primary symptoms of FD are brittle bones, and malformed bones, while the primary symptoms of MAS are endocrine-related symptoms like hyperthyroidism, precocious puberty, and Cushing’s disease.

The FD/MAS Alliance is a patient advocacy group for individuals with FD/MAS and their families and
friends.

SUPPLEMENTAL SECURITY INCOME (SSI)

SOCIAL SECURITY DISABILITY INSURANCE (SSDI)

SSDI is different from SSI.  SSI is a means-tested benefit that requires no or little income and resources, whereas SSDI is basically receiving your social security benefit early. 

SSI and SSDI When Working

Working while on SSI

Working While on SSDI

Tips for Working While on SSI/SSDI

Additional Resources

Global Genes Badge

FD/MAS Alliance is a recipient of the Financial Advocacy in RARE Impact Grant sponsored by Global Genes.  Thanks to this award, FD/MAS Financial Literacy 101 is made possible.  We thank Michael Beloff, CFP®, ChSNC® Wealth Advisor at Belvedere Wealth Partners, for donating his time and financial expertise and Caroline Fuchs, CAE, for contributing her time, communications, and digital strategy expertise to the FD/MAS community for this resource.