FD/MAS Alliance’s Fiscal Year 2022 Impact Report

The FY 2022 Annual Report outlines all the accomplishments that you and our community have made possible in the last year.  These pages are filled with hope and with the faces of those who know that, because of the generosity of our donors, they are not alone, and better evidence-based treatments are possible.

Your generosity and commitment to the fibrous dysplasia, McCune-Albright syndrome (FD/MAS) community have made life better for people with FD/MAS.

Your contributions helped produce a monthly webinar series on FD/MAS clinical care and brought pharmaceutical sponsors to collaborate on that educational programming.  Your engagement in advocacy and community gave birth to international collaboration.  Your support and participation in our research initiative, the FD/MAS Patient Registry, have elevated the project.  Researchers are publishing registry data, and we reached the million-dollar mark for research grant funding this year, thanks to your efforts.

Thank you, because you made this year’s steady progress possible.

As you know, FD/MAS Alliance is a 501c(3) nonprofit organization led by those most affected by this disease.  Your donations and the generosity of others like you support and determine our work.  We cannot do this alone, and with you, we do not have to.  For that, we are deeply grateful.