Get Involved

Don’t think you can help?
You're mistaken.

You Can make a

Difference

The FD/MAS Alliance relies on people just like you to fulfill it’s mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.

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Ways you Can

Help

Donate

Donate, and then increase your impact by fundraising.

Volunteer

Volunteer for the FD/MAS Alliance. We need writers, planners, graphic designers, and more! And we’re always interested in new ideas of how you could help.

Participate

Participate In Advocacy

Raise awareness among societal decision-makers about the obstacles of living with FD/MAS. We will help you identify key moments when your perspective could make a difference, and you share your story to help others understand the financial, emotional, and social burdens of FD/MAS.

Join

Join A Leadership Team

Interested and motivated community members, including patients, caregivers, and medical personnel, are eligible to serve on the Board.

Review our 2020 FDF Board application to learn more.

Scientists and clinicians who are interested in joining our Advisory Council, please email Adrienne McBride, Executive Director at amcbride@fibrousdysplasia.org for more information.