Get Involved

Don’t think you can help?
You're mistaken.

You Can make a


The FD/MAS Alliance relies on people just like you to fulfill it’s mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.

Ways you Can



Donate, and then increase your impact by fundraising.


Volunteer for the FD/MAS Alliance. We need writers, planners, graphic designers, and more! And we’re always interested in new ideas of how you could help.


Participate In Advocacy

Raise awareness among societal decision-makers about the obstacles of living with FD/MAS. We will help you identify key moments when your perspective could make a difference, and you share your story to help others understand the financial, emotional, and social burdens of FD/MAS.


Join A Leadership Team

Interested and motivated community members, including patients, caregivers, and medical personnel, are eligible to serve on the Board.

Review our 2020 FDF Board application to learn more.

Scientists and clinicians who are interested in joining our Advisory Council, please email Adrienne McBride, Executive Director at for more information.