Get Involved

Don’t think you can help?
You're mistaken.

You Can make a


The FD/MAS Alliance relies on people just like you to fulfill it’s mission. Everyone can contribute something, and when enough people do, that’s when we are able to make a difference.

Ways you Can



Donate, and then increase your impact by fundraising.


Volunteer for the FD/MAS Alliance. We need writers, planners, graphic designers, and more! And we’re always interested in new ideas of how you could help.


Participate In Advocacy

Raise awareness among societal decision-makers about the obstacles of living with FD/MAS. We will help you identify key moments when your perspective could make a difference, and you share your story to help others understand the financial, emotional, and social burdens of FD/MAS.


Join A Leadership Team

Interested and motivated community members, including patients, caregivers, and medical personnel, are eligible to serve on the Board.

Fill out our FD/MAS Alliance Board Survey  to learn more and be considered as a candidate.

Scientists and clinicians who are interested in joining our Advisory Council, please email Adrienne McBride, Executive Director at for more information.