February 20th-27th is FD/MAS Global Awareness Week.
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2022 we celebrate the third annual FD/MAS Global Awareness Week.
Join Us In 2022:
This is my rare – This is my FD/MAS
FD/MAS is such a rare and complicated disease that it is very difficult to help others understand the diagnosis. Because the disease can appear in any combination of bones, the skin and hormonal functions, every person with FD/MAS is unique, each a rare presentation of a rare disease.
This Global Awareness Week we hope to build an understanding of FD/MAS and celebrate the unique nature of each person living with this diagnosis. Join us by following the hashtag #thisismyFDMAS and tagging us in your FD/MAS Global Awareness Week posts.