FD/MAS Global Awareness Week

 

February 20th-27th is FD/MAS Global Awareness Week.
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2021 we celebrate the second annual FD/MAS Global Awareness Week.

Finding Your Strength in 2021
It’s been a difficult and unpredictable year, but those of us in the FD/MAS community are used to pushing through difficult and unpredictable circumstances. It’s not just our 2020-2021 or our quarantine reality, it’s our normal. That’s why this year the FD/MAS Alliance is focusing FD/MAS Global Awareness Week on Finding Your Strength. 

 

 

 

 

 

 

 

Our First Ever Instagram Live, February 20th 1pm

Join Lauren Foster, Advocacy Chair and Tovah Burstein, Community Engagement Director as they explain this year’s theme of “Find Your Strength” and all the ways you can participate.

 

 

 

 

 

Click here & go live with Lauren & Tovah

February 27th 1pm EST

Perspectives on Strength

Join Anne Corvelle, the mother of a 7 year-old FD/MAS warrior and Sarah Mumper a 24 year old FD/MAS warrior and passionate advocate for an honest conversation about the every-day reality, the fears, and the challenges of this disease, but also the ways they find their strength.

Register for Perspectives on Strength

You can participate by

 

Sharing Your Strength

We’re inviting patients and caregivers, partners, and family members to respond to a short prompt with a photo and their personal mantra or motto. Share with the community how you find your strength. Respond to the Prompt Here

 

 

Volunteering to Advocate

Volunteer to write to or speak with your Senator to advocate for federal research funding for FD/MAS. You can help us unlock hundreds of thousands of dollars of research funding for FD/MAS! Sign up here.

 

 

Supporting the FD/MAS Alliance

We ask you and your community to contribute $20 because we believe that when we come together,  advance new research, open up new treatment options, spark new hope, and improve the lives of those affected by FD/MAS. Join the movement here.