FD/MAS Global Awareness Week

 

February 20th-27th is FD/MAS Global Awareness Week.
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2023 we celebrate the fourth annual FD/MAS Global Awareness Week.

 

#myFDMASlife

In 2023, our theme is #myFDMASlife. Our community is full of a wide range of experiences, interests, talents, and passions. We want recognize the challenges that come with a diagnosis of FD/MAS while also celebrating the many ways people in the FD/MAS community live life to the fullest. Follow us on Facebook and Instagram to see FD/MAS factoids and meet FD/MAS community members sharing their version of #myFDMASlife.

There are several ways you can participate in #myFDMASlife, but we’re most excited to introduce the first-ever FD/MAS Global Awareness Art Competition for visual and literary art! We hope you’ll share your experience and your talent by submitting a piece.

2023 FD/MAS Global Awareness Week Activities:

 

FD/MAS Global Awareness Art Competition
We’re inviting all those in the FD/MAS community (those diagnosed and family members of the diagnosed, as well as friends, clinicians, and researchers) to submit visual and literary art to the first-ever FD/MAS Global Awareness Week Art Competition. Here are the contest guidelines. All entries are due by February 15th. 

 

 

 

 

FD/MAS Global Awareness Week Community Social -Hosted by the Patient Advisory Council
Join us Sunday, February 26th, from 2:00 – 3:30 pm EST (7:00-8:30 pm GMT) for an informal community social. We’ll start by watching a short TED Talk before we open it up to general conversation about our experiences with FD/MAS and life in general. It can be a powerful experience to meet and connect with others who really know and understand your experience. The PAC aims to make this a fun, casual, and uplifting experience. Register here to connect!

 

 

Share an FD/MAS Factoid
We’ve worked with medical experts and patient advisors to come up with some shareable facts about fibrous dysplasia, McCune-Albright syndrome. Raise awareness in your community by sharing them widely! You can find them here (soon!) or by following us on Facebook, Instagram, and Twitter.

 

 

 

 

Supporting the FD/MAS Alliance
Join the Charlie’s Angels Monthly Giving Circle. Even a small monthly donation goes a long way!  We believe that when we come together, we can advance new research, open up new treatment options, spark new hope, and improve the lives of those affected by FD/MAS. Join the movement here.