FD/MAS Global Awareness Week

 

February 20th-27th is FD/MAS Global Awareness Week.
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2026 we celebrate the seventh annual FD/MAS Global Awareness Week.

Learn more about FD/MAS Global Awareness Week and the countries involved in promoting it.

Celebrating in 2026

Our 2026 theme is #FDMASFoundFamily. Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a genetic disease that affects the 20th chromosome, but it’s not a disease that we inherit from or pass on to our families!

It CAN be one where we find family–people who support us through thick and thin–whether it’s the amazing virtual community we’ve created at the Alliance, or friends, coworkers, neighbors, even a medical team etc that offer deep supportive bonds and a sense of belonging. During FD/MAS Global Awareness Week we’ll be celebrating the Found Family that supports us through our FD/MAS.

Throughout the week, we’ll have a photo and fact sharing initiative as well as several synchronous and asynchronous events! We hope you’ll join us to raise awareness and build community! Stay tuned for more updates to come!

You can also follow us on Facebook and Instagram to see the latest news, information, and initiatives.

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FD/MAS Found Family

Share A Photo

One of our favorite FD/MAS Global Awareness Week traditions is our community photo sharing initiative.

That’s why we’re creating the…FD/MAS Family Photo Album

Become an Advocate

Our February Monthly Meet-Up theme is all about becoming an advocate. We’ll be hosting a low-pressure, no commitment discussion of what it looks like to be an advocate! Come get to know others in the FD/MAS community and share your ideas.

24 Hour Open Office

Mark your calendar for Feb 21st at 5pm GMT (12:00 noon EST) to Feb 22nd 5pm GMT (12:00 noon EST).

We’ll be hosting a 24 hour “Open Office” and we’re hoping to say “hi” to as many people in the FD/MAS community as we can! This drop-in Zoom room will have a goal of speaking to someone in every time zone of the US and in as many countries as possible. Stop in and say hi!

Media Kit: Images and captions ready for you to share!

We believe that the more people know about FD/MAS, the more empathy, understanding and agencey the FD/MAS community will be able to access. If you’re ready to become an FD/MAS advocate, you can start by talking about your experience and sharing infromation about FD/MAS with your community.

Our FD/MAS Global Awareness Week Media Kit has images and caption ideas that you can use and adapt. Let’s go!

 

 

 

 

Here are some highlights from previous FD/MAS Global Awareness Weeks:

2025: FD/MAS Then and Now

 

 

 

 

 

2024: My FD/MAS Life

  • A Community Social
  • Video Story Sharing Project
  • Photo sharing

 

 

 

 

 

2023: My FD/MAS Life

  • A Community Social
  • Literary and Visual Art Competition
  • Day in the life videos

 

 

 

2022: This is my FD/MAS

  • Two live events–Meet the Intl. Consortium and Pacing the Pool
  • “This is my FD/MAS” community photos
  • Shareable facts 

 

 

 

2021: Find Your Strength

  • Two live events–Instagram and Zoom “Perspectives on Strength” conversation
  • “Share your strength” photo and captions

 

 

 

2020: Our Inaugural Year
Imagine a world without FD/MAS