February 20th-27th is FD/MAS Global Awareness Week.
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2024 we celebrate the fifth annual FD/MAS Global Awareness Week.
Learn more about FD/MAS Global Awareness Week and the countries involved in promoting it.
Celebrating in 2024
In 2024, our theme is #FacesofFDMAS.
FD/MAS is a complicated and rare disease. Those diagnosed with the disease and their caregivers often feel overwhelmed and alone. Faces of FD/MAS hopes to give comfort and community to those in the FD/MAS community by demonstrating that they are not alone and that those with FD/MAS can lead full, vibrant, and successful lives.
#FacesofFDMAS aims to illustrate the great need for improved understanding and treatment outcomes and the urgency for research and quality-of-life advancements.
You can also follow us on Facebook and Instagram to see the latest news, information, and initiatives.
Media Kit: Images and captions ready for you to share!
We believe that the more people know about FD/MAS, the more empathy, understanding and agencey the FD/MAS community will be able to access. If you’re ready to become an FD/MAS advocate, you can start by talking about your experience and sharing infromation about FD/MAS with your community.
Our FD/MAS Global Awareness Week Media Kit has images and caption ideas that you can use and adapt. Let’s go!
Here are some highlights from previous FD/MAS Global Awareness Weeks:
2023: My FD/MAS Life
- A Community Social
- Literary and Visual Art Competition
- Day in the life videos
2022: This is my FD/MAS
- Two live events–Meet the Intl. Consortium and Pacing the Pool
- “This is my FD/MAS” community photos
- Shareable facts
2021: Find Your Strength
- Two live events–Instagram and Zoom “Perspectives on Strength” conversation
- “Share your strength” photo and captions
2020: Our Inaugural Year
Imagine a world without FD/MAS
We are grateful to our 2024 supporters who made these 2024 initiatives possible:
& individual donors.