FD/MAS Global Awareness Week

 

February 20th-27th is FD/MAS Global Awareness Week.
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2024 we celebrate the fifth annual FD/MAS Global Awareness Week.

Learn more about FD/MAS Global Awareness Week and the countries involved in promoting it.

Celebrating in 2024

In 2024, our theme is #FacesofFDMAS.

FD/MAS is a complicated and rare disease. Those diagnosed with the disease and their caregivers often feel overwhelmed and alone. Faces of FD/MAS hopes to give comfort and community to those in the FD/MAS community by demonstrating that they are not alone and that those with FD/MAS can lead full, vibrant, and successful lives.

#FacesofFDMAS aims to illustrate the great need for improved understanding and treatment outcomes and the urgency for research and quality-of-life advancements.

You can also follow us on Facebook and Instagram to see the latest news, information, and initiatives.

blockquote

Faces of FD/MAS - 2024

Faces of FD/MAS

Faces of FD/MAS is an FD/MAS Alliance video project envisioned and guided by the Patient Advisory Council (PAC). The project aims to capture the diverse experiences of those in the fibrous dysplasia, McCune-Albright syndrome (FD/MAS) community.

We’ve released the first video as a sneak peek of what’s to come!

Share your Photo

Each year, we celebrate FD/MAS Global Awareness Week by sharing photos and stories from the amazing people in our community. Participate this year by sharing a photo and answering a few quick prompts!

Staying Active with FD/MAS

Join us February 24th from 10:00 to 11:30 am (EST) for a community social hosted by FD/MAS advocates Tyler Healy and Sarah Mumper. Tyler will talk about his experience being diagnosed as a very active athlete. Hear from Tyler and share your experience with those who really, really understand.

Register here.

Media Kit: Images and captions ready for you to share!

We believe that the more people know about FD/MAS, the more empathy, understanding and agencey the FD/MAS community will be able to access. If you’re ready to become an FD/MAS advocate, you can start by talking about your experience and sharing infromation about FD/MAS with your community.

Our FD/MAS Global Awareness Week Media Kit has images and caption ideas that you can use and adapt. Let’s go!

 

 

 

 

Here are some highlights from previous FD/MAS Global Awareness Weeks:

 

2023: My FD/MAS Life

  • A Community Social
  • Literary and Visual Art Competition
  • Day in the life videos

 

 

 

2022: This is my FD/MAS

  • Two live events–Meet the Intl. Consortium and Pacing the Pool
  • “This is my FD/MAS” community photos
  • Shareable facts 

 

 

 

2021: Find Your Strength

  • Two live events–Instagram and Zoom “Perspectives on Strength” conversation
  • “Share your strength” photo and captions

 

 

 

2020: Our Inaugural Year
Imagine a world without FD/MAS

 

 

We are grateful to our 2024 supporters who made these 2024 initiatives possible:

& individual donors.