How is Fibrous Dysplasia/ McCune-Albright Syndrome (FD/MAS) going to affect my life now and in the future?

There is no simple answer to this question. The effects of FD/MAS are as different as each person who has it. For some people, it has no impact at all, while others may end up needing a cane or a wheelchair. The vast majority of people with FD/MAS lead full, meaningful lives. In rare cases, there can be loss of vision. In some cases, there is a partial hearing loss that can be normalized with hearing aids. An important feature of FD/MAS is that almost all of the tissues that will be affected are affected by an early age – in most cases before 10. So that if a thorough evaluation is done, it can be determined what tissues are affected, and just as importantly, what tissues are not and almost certainly will not be affected. Once the affected tissues are determined, it becomes easier to monitor them over time.