Watch the Launch Meeting for International Consortium for FD/MAS

On July 14th 2022, the International Consortium for FD/MAS (ICFDMAS) held a launch meeting open to all researchers, clinicians, and advocates. The meeting agenda included an introduction to the ICFDMAS, a presentation from the collaborating patient groups from around the globe, and updates on clinical and basic research in the field of FD/MAS. The meeting can be viewed in full here:

Agenda

• 15:00: Welcome Adrienne McBride, Board Director ICFDMAS
• 15:05: Introduction to consortium Dr. Natasha Appelman-Dijkstra, Board Director ICFDMAS
• 15:15: Evaluation of the Clinical Care Pathway Dr. Michael Collins, National Institute of Health, USA
• 16:00: Short break 
• 16:15: Update from the International Patient GroupsMartine Dekker, Dutch patient association- Patiëntenvereniging Fibreuze Dysplasie
• 16:30: Update on FD/MAs Studies Dr. Alison Boyce, National Institute of Health, USA
• 17:00: Update EuRR-Bone Registry and disease-specific module FD/MAS Dr. Natasha Appelman-Dijkstra, Board Director ICFDMAS
• 17:20: Update on the FD/MAS animal studies Dr. Chelsea Hopkins, University of Kopenhagen