Physician Database

The FD/MAS Alliance maintains a Physician Database of experienced doctors who have been referred to us by others with Fibrous Dysplasia and McCune-Albright Syndrome and then vetted by our Medical Advisory Council. Our database gathers a wide range of experienced doctors who treat children and adults. Practice areas cover orthopedics, endocrinology, craniofacial surgery, dentistry, and pain management.

Being listed does not indicate that the FD/MAS Alliance endorses services and the quality of care provided. It is the responsibility of parents and adults to verify whether a particular doctor meets their needs.

In addition to the providers listed below, we also want to highlight the resource of Psychology Today. We know how important mental health and emotional well-being is for everyone’s health, including and most especially those diagnosed with fibrous dysplasia, McCune-Albright syndrome, and their caregivers. We encourage everyone to use this resource to locate and connect with a licensed therapist to manage this aspect of health.

Get Added to Our Physician Database

Complete the application if you want to be included or if you would like to nominate a doctor for inclusion in our database. The  Medical Advisory Board of the Alliance will review each application. Please click here to go to our nomination form.

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For additional local resources, please visit the NORD Rare Disease Centers of Excellence.

Leslie Acakpo-Satchivi, MD, PhD, FAANS

Miles Away 
• Neurosurgery

William Accousti, MD

Miles Away 
• Orthopedic Surgery

Deanna Adkins, MD

Miles Away 
• Pediatric Endocrinology

Siviero Agazzi, MD

Miles Away 
• Neurosurgery

Syed Faisal Ahmed, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Sunday Akintoye, MD, BDS, DDS, MS

Miles Away 
• Oral and Maxillofacial Surgery

Benjamin Alman, MD

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Panagiota Andreopoulou, MD

Miles Away 
• Endocrinology

Alexandre Arkader, MD

Miles Away 
• Orthopedic Surgery