Physician Database

The FD/MAS Alliance maintains a Physician Database of experienced doctors who have been referred to us by others with Fibrous Dysplasia and McCune-Albright Syndrome and then vetted by our Medical Advisory Council. Our database gathers a wide range of experienced doctors who treat children and adults. Practice areas cover orthopedics, endocrinology, craniofacial surgery, dentistry, and pain management.

Being listed does not indicate that the FD/MAS Alliance endorses services and the quality of care provided. It is the responsibility of parents and adults to verify whether a particular doctor meets their needs.

Get Added to Our Physician Database

Complete the application if you want to be included or if you would like to nominate a doctor for inclusion in our database. The  Medical Advisory Board of the Alliance will review each application. Please click here to go to our nomination form.

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For additional local resources, please visit the NORD Rare Disease Centers of Excellence.

Leslie Acakpo-Satchivi, MD, PhD, FAANS

Miles Away 
• Neurosurgery

William Accousti, MD

Miles Away 
• Orthopedic Surgery

Deanna Adkins, MD

Miles Away 
• Pediatric Endocrinology

Siviero Agazzi, MD

Miles Away 
• Neurosurgery

Syed Faisal Ahmed, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Sunday Akintoye, MD, BDS, DDS, MS

Miles Away 
• Oral and Maxillofacial Surgery

Benjamin Alman, MD

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Panagiota Andreopoulou, MD

Miles Away 
• Endocrinology

Alexandre Arkader, MD

Miles Away 
• Orthopedic Surgery

Scott P. Bartlett, MD

Miles Away 
• Cosmetic and Reconstructive Plastic Surgery

Evan Beale, MD

Miles Away 
• Plastic and Reconstructive Surgery

Specialty

Plastic and Reconstructive Surgery

Contact Information

View Bio

Mohan V Belthur, MD, MD

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Contact Information

Company

Phoenix Children's Hospital

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Tarek Bisat, MD

Miles Away 
• Endocrinology

Kofi Boahene, MD

Miles Away 
• Otolaryngology-Head & Neck Surgery

Specialty

Otolaryngology-Head & Neck Surgery

Contact Information

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Henry Bone, MD

Miles Away 
• Endocrinology

Frederick Boop, MD

Miles Away 
• Neurosurgery

Alison Boyce, MD

Miles Away 
• Pediatric Endocrinology

William Boydston, MD

Miles Away 
• Neurosurgery

George Brindley, MD

Miles Away 
• Orthopedic Surgery

Susan Bukata, MD

Miles Away 
• Orthopedic Surgery

Andrea Burke, MD, DMD

Miles Away 
• Oral and Maxillofacial Surgery

Andrew Calabria, MD

Miles Away 
• Endocrinology and Diabetes

Kevin Calder, MD, FRCSC

Miles Away 
• Plastic and Reconstructive Surgery

Specialty

Plastic and Reconstructive Surgery

Contact Information

View Bio

Rachel Casey, MD

Miles Away 
• Gynecology

Roland Chapurlat, MD

Miles Away 
• Rheumatology

Yu-Ray Chen, MD

Miles Away 
• Oral and Maxillofacial Surgery

Specialty

Oral and Maxillofacial Surgery

Contact Information

Emily Christison-Lagay, MD

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Bart L. Clarke, MD

Miles Away 
• Endocrinology

Specialty

Endocrinology

Contact Information

View Bio

Michael Collins, MD

Miles Away 
• Endocrinology

Matthew Colman, MD

Miles Away 
• Orthopedic Surgery

Judd Cummings, MD

Miles Away 
• Orthopedic Surgery

Timothy Darmon, MD

Miles Away 
• Orthopedic Surgery

Mark D DeBoer, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Linda DiMeglio, MD

Miles Away 
• Pediatric Endocrinology & Diabetology

Specialty

Pediatric Endocrinology & Diabetology

Contact Information

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Catherine Dinauer, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Specialty

Endocrinology, Pediatric Endocrinology

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Sean P. Donahue, MD, PhD

Miles Away 
• Opthamology

Craig Dufresne, MD

Miles Away 
• Plastic and Reconstructive Surgery

Specialty

Plastic and Reconstructive Surgery

Contact Information

View Bio

Michael Econs, MD

Miles Away 
• Endocrinology

Erica Eugster, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Francis Lee Francis, MD, PhD, FAAOS

Miles Away 
• Orthopedic Surgery

Larry Frohman, MD

Miles Away 
• Opthamology

Robert Gagel, MD

Miles Away 
• Endocrinology

Gary Gallia, MD, PhD

Miles Away 
• Neurosurgery

Paul Gardner, MD

Miles Away 
• Neurosurgery

Jamie Getano, MD

Miles Away 
• Oral and Maxillofacial Surgery

Specialty

Oral and Maxillofacial Surgery

Contact Information

View Bio

Parker Gibbs, MD

Miles Away 
• Orthopedic Surgery

Nathan Gilbert

Miles Away 
• Orthopedic Surgery

Steven Gitelis, MD

Miles Away 
• Orthopedic Oncology, Orthopedic Surgery

Specialty

Orthopedic Oncology, Orthopedic Surgery

Contact Information

View Bio

Francis Glorieux, MD, PhD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Specialty

Endocrinology, Pediatric Endocrinology

Contact Information

View Bio

Veronica Gomez-Lobo, MD

Miles Away 
• Gynecology

Adan Gonzalez, MD

Miles Away 
• Nephrology

Chad Gordon, DO

Miles Away 
• Oral and Maxillofacial Surgery

Specialty

Oral and Maxillofacial Surgery

Contact Information

View Bio

Marc Greenberg, MD

Miles Away 
• Opthamology

Dr. Brian Grottkau, MD

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Company

Harvard Medical School

Requires Referral

Yes

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Amitabh Gulati, MD

Miles Away 
• Pain

Rosemary Hall, MD

Miles Away 
• Endocrinology

Matthew Halsey, MD, MD

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Contact Information

Company

Oregon Health & Science University

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Kim Hammerberg, MD

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Specialty

Orthopedic Surgery, Pediatric Orthopedic Surgery

Contact Information

View Bio

Adam Hassan, MD

Miles Away 
• Opthamology, Plastic and Reconstructive Surgery

Specialty

Opthamology, Plastic and Reconstructive Surgery

Contact Information

View Bio

James B. Hayden, MD, PhD, MD, PhD

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Contact Information

Company

Oregon Health & Science Institute

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Rex Haydon, MD, PhD

Miles Away 
• Orthopedic Surgery

Fritz Hefti, MD

Miles Away 
• Orthopedic Surgery

Carl Heilman, MD

Miles Away 

Patrick C. Hettinger, MD

Miles Away 
• Plastic and Reconstructive Surgery

Specialty

Plastic and Reconstructive Surgery

Contact Information

View Bio

Kelly Hicks, MD

Miles Away 
• Endocrinology

Thomas Higgins, MD

Miles Away 
• Otolaryngology-Head & Neck Surgery

Larry Hoover, MD, FACS

Miles Away 
• Otolaryngology-Head & Neck Surgery

Specialty

Otolaryngology-Head & Neck Surgery

Contact Information

View Bio

Mohammad Hosein Motamedi, MD, BDS, DDS, MS

Miles Away 
• Oral and Maxillofacial Surgery

Specialty

Oral and Maxillofacial Surgery

Contact Information

View Bio

Edward Hsiao, MD, PhD

Miles Away 
• Endocrinology

Erik Imel, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Erik Imel, MD

Miles Away 
• Endocrinology

Joseph Janicki, MD, PhD

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Contact Information

View Bio

Leonard Kaban, MD, DMD

Miles Away 
• Oral and Maxillofacial Surgery

Specialty

Oral and Maxillofacial Surgery

Contact Information

View Bio

Lin Kant, MD

Miles Away 
• Plastic and Reconstructive Surgery

Specialty

Plastic and Reconstructive Surgery

Contact Information

View Bio

Richard Keen, MD

Miles Away 
• Rheumatology

Azarmindokht Khosravi, MD

Miles Away 
• Endocrinology

Specialty

Endocrinology

Contact Information

Company

Cedars-Sinai Medical Center

View Bio

Charles Kim, MD

Miles Away 
• Physical Medicine and Rehabilitation

Specialty

Physical Medicine and Rehabilitation

Contact Information

View Bio

J. Michael King, MD

Miles Away 
• Physical Medicine and Rehabilitation, Rehabilitation Medicine

Specialty

Physical Medicine and Rehabilitation, Rehabilitation Medicine

Contact Information

View Bio

David M. King, MD

Miles Away 
• Orthopedic Surgery

Petra Klinge, MD, PhD

Miles Away 
• Neurosurgery

Peter Kopp, MD

Miles Away 
• Endocrinology

Brendan Lee, MD, PhD

Miles Away 
• Genetics

Douglas Letson, MD

Miles Away 
• Orthopedic Surgery

Michael Levine, MD, FAAP, FACP, MACE

Miles Away 
• Endocrinology

Valerae Lewis, MD

Miles Away 
• Orthopedic Surgery

Steven A. Lietman, MD

Miles Away 
• Orthopedic Surgery

Michael Lim, MD

Miles Away 
• Neurosurgery

Lawrence Lustig, MD

Miles Away 
• Otolaryngology-Head & Neck Surgery

Specialty

Otolaryngology-Head & Neck Surgery

Contact Information

View Bio

Gerhard Maale, MD

Miles Away 
• Orthopedic Surgery

Diana L. Maas, MD

Miles Away 
• Endocrinology

Maureen Maciel, MD

Miles Away 
• Orthopedic Surgery

Jason Malone, D.O.

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Specialty

Orthopedic Surgery, Pediatric Orthopedic Surgery

Contact Information

Company

Nemours Children’s Hospital

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Kyle Mannion, MD

Miles Away 
• Otolaryngology-Head & Neck Surgery

Specialty

Otolaryngology-Head & Neck Surgery

Contact Information

View Bio

Michael Mannstadt, MD

Miles Away 
• Endocrinology

Cary Mariash, MD

Miles Away 
• Endocrinology

Lawrence Menendez, MD

Miles Away 
• Orthopedic Surgery

Bryan Moon, MD

Miles Away 
• Orthopedic Surgery

David Morris, MD

Miles Away 
• Plastic and Reconstructive Surgery

Specialty

Plastic and Reconstructive Surgery

Contact Information

View Bio

Carol Morris, MD

Miles Away 
• Orthopedic Surgery

Michael Mott, MD

Miles Away 
• Orthopedic Surgery

Makazan Nadezhda, MD

Miles Away 
• Endocrinology

Radha Nandagopal, MD, FAAP

Miles Away 
• Endocrinology

Lukas Nystrom, MD

Miles Away 
• Orthopedic Surgery

Richard O’Donnell, MD

Miles Away 
• Orthopedic Surgery

Susan Ott, MD

Miles Away 
• Endocrinology

Bonnie Padwa, MD, DMD

Miles Away 
• Oral and Maxillofacial Surgery

James Patrinely, MD, FACS

Miles Away 
• Opthamology

Scott Paul, MD

Miles Away 
• Pediatric Physical Medicine and Rehabilitation, Physical Medicine and Rehabilitation

Specialty

Pediatric Physical Medicine and Rehabilitation, Physical Medicine and Rehabilitation

Contact Information

View Bio

Daniel Prince, MD, MPH

Miles Away 
• Orthopedic Surgery

Aparna Ramasubramanian, MD

Miles Away 
• Opthamology

Robert Lawrence Randall, MD, FACS

Miles Away 
• Orthopaedic Surgery, Pediatric Oncology, Oncology

Specialty

Orthopaedic Surgery, Pediatric Oncology, Oncology

Contact Information

View Bio

Ellen M Raney, MD, FAAP, MD, FAAP

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Contact Information

Company

Shriners Hospital for Children

View Bio

Likith Reddy, DDS

Miles Away 
• Dentistry, Oral and Maxillofacial Surgery

Pat Ricalde, MD, DDS, FACS

Miles Away 
• Oral and Maxillofacial Surgery

Specialty

Oral and Maxillofacial Surgery

Contact Information

View Bio

Mara Riminucci, MD, PhD

Miles Away 
• Pathologist

Scott Rivkees, MD

Miles Away 
• Endocrinology

Cemre Robinson, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Robert Robzbruch, MD

Miles Away 
• Orthopedic Surgery

Steven M. Roser, DMD, MD

Miles Away 
• Oral and Maxillofacial Surgery

S. Robert Rozbruch, MD

Miles Away 
• Orthopedic Surgery

Eric Rush, MD

Miles Away 
• Endocrinology

William Russell, MD

Miles Away 
• Endocrinology, Pediatric Endocrinolgy

Craig Sessions, MD

Miles Away 
• Orthopedic Surgery

Maurice Sholas, MD, PhD

Miles Away 
• Pediatric Physical Medicine and Rehabilitation, Physical Medicine and Rehabilitation

Specialty

Pediatric Physical Medicine and Rehabilitation, Physical Medicine and Rehabilitation

Contact Information

View Bio

Raj Shrivastava, MD

Miles Away 
• Neurosurgery

Jill Simmons, MD

Miles Away 
• Endocrinology

Fred Singer, MD

Miles Away 
• Endocrinology

Peter Smith, MD

Miles Away 
• Orthopedic Surgery

Carl Snyderman, MD, MBA

Miles Away 
• Otolaryngology-Head & Neck Surgery

Specialty

Otolaryngology-Head & Neck Surgery

Contact Information

View Bio

Charles Soparker, MD, PhD

Miles Away 
• Opthamology

Anna Spagnoli, MD

Miles Away 
• Endocrinology, Pediatric Endocrinology

Specialty

Endocrinology, Pediatric Endocrinology

Contact Information

View Bio

Ann Spagnoli, MD

Miles Away 
• Endocrinology

Christopher Sperati, MD

Miles Away 
• Nephrology

Shawn Standard, MD

Miles Away 
• Orthopedic Surgery

Robert P. Stanton, MD

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Specialty

Orthopedic Surgery, Pediatric Orthopedic Surgery

Contact Information

View Bio

Dennis Styne, MD

Miles Away 
• Pediatric Endocrinolgy

Peter Tebben, MD

Miles Away 
• Endocrinology

Mihir Thacker, MD

Miles Away 
• Orthopedic Surgery

Paul Thornton, MB, BCh, MRCPI, DCh

Miles Away 
• Endocrinology

Tadanori Tomita, MD

Miles Away 
• Neurosurgery

Laura Tosi, MD

Miles Away 
• Orthopedic Surgery, Pediatric Orthopedic Surgery

Specialty

Orthopedic Surgery, Pediatric Orthopedic Surgery

Contact Information

View Bio

Thanos Tsirikos, MD, FRCS, PhD

Miles Away 
• Orthopedic Surgery

Wakenda Tyler, MD MPH

Miles Away 
• Orthopedic Surgery

Mark Urata, DDS

Miles Away 
• Dentistry, Plastic and Reconstructive Surgery

Specialty

Dentistry, Plastic and Reconstructive Surgery

Contact Information

View Bio

H.M. (Hanneke) van West, MD

Miles Away 
• Orthopedic Surgery

Halley Wasserman, MD, MS

Miles Away 
• Endocrinology

David Weber, MD, MSCE

Miles Away 
• Endocrinology, Pediatric Endocrinology

Specialty

Endocrinology, Pediatric Endocrinology

Experience

Assistant Professor of Pediatrics, Endocrinology
Dr. Weber is a clinical researcher focused on improving bone health in children. He is currently focused on investigating the effects of type 1 diabetes and Duchenne muscular dystrophy on the skeleton.

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Ezekiel Weis, MD

Miles Away 
• Opthamology

Kelly Wentworth, MD

Miles Away 
• Endocrinology

Thomas Whittaker, JD, MD

Miles Away 
• Opthamology

Michael Whyte, MD

Miles Away 
• Diabetes, Endocrinology, Internal Medicine, Metabolism

Specialty

Diabetes, Endocrinology, Internal Medicine, Metabolism

Contact Information

View Bio

Shlomo Wientroub, MD

Miles Away 
• Orthopedic Surgery

Specialty

Orthopedic Surgery

Contact Information

View Bio

Joseph Williams, MD

Miles Away 
• Plastic and Reconstructive Surgery

Felasfa M. Wodajo, MD

Miles Away 
• General Surgery, Medical Oncology, Orthopedic Surgery

Specialty

General Surgery, Medical Oncology, Orthopedic Surgery

Contact Information

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Sze Choong Wong, MD

Miles Away 
• Endocrinology

Burak Yilmaz, DDS

Miles Away 
• Prosthodontics, Implant dentistry, color science

Specialty

Prosthodontics, Implant dentistry, color science

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