FD/MAS Research Update 2024

FD/MAS Alliance Presents a 2024 Research Update:

April 9th at 3pm EST (8pm GMT)


For ten years now, Team FD/MAS has been dedicated to funding promising research projects through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. During that time, the community has supported 20 research projects to advance FD/MAS research and, ultimately, find a treatment or cure for FD/MAS.

In 2021, Team FD/MAS led by Team Captain Cindi Brandt Levin and the Healy family raised $161,373 for fibrous dysplasia, McCune-Albright syndrome (FD/MAS)-focused research. This enabled Team FD/MAS and UPenn Orphan Disease Center to award three research grants in early 2022.

We revisit those projects recently completed in this 2024 Research Update. Drs. Fernando Fierro (University of California, Davis), Charles Hoffman (Boston College), Biagio Palmisano (Sapienza University, Rome), and Kelly Wentworth (University of California, San Francisco) will report on the projects made possible by the Million Dollar Bike Ride. They will briefly explain the continued course of their FD/MAS research and the impact Team FD/MAS grants have on their work.

The presentation and subsequent discussion will be moderated by Scientific Advisory Council Chair Dr. Michael Collins (NIH, NIDCR) and is open to the public.

Register Here: