Research Archive

FD/MAS Publications

Association of Hearing Loss and Otologic Outcomes With Fibrous Dysplasia. JAMA Otolaryngol Head Neck Surg. 2018

Comorbidity, Craniofacial care

This study examines FD lesions surrounding the ear and skull base. Though many patients fear the loss of hearing, research suggests watchful waiting rather than aggressive surgery.

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Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases 2019


Treatment guidelines compiled by the International Consortium of FD/MAS researchers. These guidelines include a series of flowcharts that can help patients and caregivers decide on appropriate screening and treatment plans.


Bone-Grafting in Polyostotic Fibrous Dysplasia. J Bone Joint Surg Am. 2016

Axial and Appendicular Management

Research suggests that bone grafting is not an effective way to remove FD lesions since lesions tend to regrow and take over otherwise healthy bone grafts.



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Utility of Optical Coherence Tomography in theDiagnosis and Management of Optic Neuropathy inPatients with Fibrous Dysplasia

Craniofacial care

Optic neuropathy or vision loss is a major concern for people with craniofacial fibrous dysplasia (FD). Because surgical correction can lead to further complications, management and treatment for FD related vision loss has been a challenge and source of debate for decades. Some researchers suggest that vision loss in FD is more complicated than compression […]


Dental Perspectives on Fibrous Dysplasia and McCune-Albright Syndrome

Craniofacial care

McCune-Albright syndrome (MAS) is a rare multisystem disorder characterized by the triad of polyostotic fibrous dysplasia (FD), endocrine disorders, and café-au-lait skin pigmentation. Ninety percent of MAS patients have FD lesions in the craniofacial area, resulting in significant orofacial deformity, dental disorders, bone pain, and compromised oral health. Maxillomandibular FD is also associated with dental […]


FD/MAS Beyond 40

A discussion with FD/MAS Alliance Medical Advisor, Dr. Edward Hsiao, UCSF, with FD/MAS advocate Shelley Hebert.

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Surgical Management of FD

A discussion with FD/MAS Medical Advisor, Dr. Jason Malone of Nemours Children’s Hospital of Orlando, and FD/MAS Caregiver, Darci Christner.

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Craniofacial Care

Craniofacial care

A discussion with FD/MAS Alliance Medical Advisor, Dr. Andrea Burke of University of Washington School of Dentistry.

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