Research Archive

FD/MAS Publications

Association of Hearing Loss and Otologic Outcomes With Fibrous Dysplasia. JAMA Otolaryngol Head Neck Surg. 2018

Comorbidity, Craniofacial care

This study examines FD lesions surrounding the ear and skull base. Though many patients fear the loss of hearing, research suggests watchful waiting rather than aggressive surgery.

Click to Read

Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases 2019

General

Treatment guidelines compiled by the International Consortium of FD/MAS researchers. These guidelines include a series of flowcharts that can help patients and caregivers decide on appropriate screening and treatment plans.

DOWNLOAD PDF

Bone-Grafting in Polyostotic Fibrous Dysplasia. J Bone Joint Surg Am. 2016

Axial and Appendicular Management

Research suggests that bone grafting is not an effective way to remove FD lesions since lesions tend to regrow and take over otherwise healthy bone grafts.

DOWNLOAD PDF

Research

This library is organized into several sections. Please use the links below to navigate to your section of interest. If you would like to nominate a published scientific work for inclusion, please contact us.

Filter Research by:

Utility of Optical Coherence Tomography in theDiagnosis and Management of Optic Neuropathy inPatients with Fibrous Dysplasia

Craniofacial care

Optic neuropathy or vision loss is a major concern for people with craniofacial fibrous dysplasia (FD). Because surgical correction can lead to further complications, management and treatment for FD related vision loss has been a challenge and source of debate for decades. Some researchers suggest that vision loss in FD is more complicated than compression […]

DOWNLOAD PDF

Dental Perspectives on Fibrous Dysplasia and McCune-Albright Syndrome

Craniofacial care

McCune-Albright syndrome (MAS) is a rare multisystem disorder characterized by the triad of polyostotic fibrous dysplasia (FD), endocrine disorders, and café-au-lait skin pigmentation. Ninety percent of MAS patients have FD lesions in the craniofacial area, resulting in significant orofacial deformity, dental disorders, bone pain, and compromised oral health. Maxillomandibular FD is also associated with dental […]

DOWNLOAD PDF

Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases 2019

General

Treatment guidelines compiled by the International Consortium of FD/MAS researchers. These guidelines include a series of flowcharts that can help patients and caregivers decide on appropriate screening and treatment plans.

DOWNLOAD PDF

Fibrous Dysplasia/McCune-Albright Syndrome. GeneReviews 2015

General

This chapter offers an excellent overview of FD/MAS as a disease. Similar to the Endocrine Reviews article, this chapter is not quite as extensive and may be more accessible for the lay reader.

DOWNLOAD PDF