FD/MAS Publications
Association of Hearing Loss and Otologic Outcomes With Fibrous Dysplasia. JAMA Otolaryngol Head Neck Surg. 2018
Comorbidity, Craniofacial care
This study examines FD lesions surrounding the ear and skull base. Though many patients fear the loss of hearing, research suggests watchful waiting rather than aggressive surgery.
Click to ReadBest practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases 2019
General
Treatment guidelines compiled by the International Consortium of FD/MAS researchers. These guidelines include a series of flowcharts that can help patients and caregivers decide on appropriate screening and treatment plans.
DOWNLOAD PDFBone-Grafting in Polyostotic Fibrous Dysplasia. J Bone Joint Surg Am. 2016
Axial and Appendicular Management
Research suggests that bone grafting is not an effective way to remove FD lesions since lesions tend to regrow and take over otherwise healthy bone grafts.
DOWNLOAD PDFResearch
This library is organized into several sections. Please use the links below to navigate to your section of interest. If you would like to nominate a published scientific work for inclusion, please contact us.
Filter Research by:
Fibrous Dysplasia/McCune-Albright Syndrome: A Rare, Mosaic Disease of Gas Activation, Endocrine Reviews 2020
Endocrine Care General ResearchA comprehensive review of FD/MAS clinical care and the state of FD/MAS research.
DOWNLOAD PDFBest practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases 2019
GeneralTreatment guidelines compiled by the International Consortium of FD/MAS researchers. These guidelines include a series of flowcharts that can help patients and caregivers decide on appropriate screening and treatment plans.
DOWNLOAD PDFFibrous Dysplasia/McCune-Albright Syndrome. GeneReviews 2015
GeneralThis chapter offers an excellent overview of FD/MAS as a disease. Similar to the Endocrine Reviews article, this chapter is not quite as extensive and may be more accessible for the lay reader.
DOWNLOAD PDF