Research Archive

Utility of Optical Coherence Tomography in theDiagnosis and Management of Optic Neuropathy inPatients with Fibrous Dysplasia

Optic neuropathy or vision loss is a major concern for people with craniofacial fibrous dysplasia (FD). Because surgical correction can lead to further complications, management and treatment for FD related vision loss has been a challenge and source of debate for decades. Some researchers suggest that vision loss in FD is more complicated than compression of the optic nerve canal alone. For example, excess growth hormone in FD patients can lead to bone enlargement in the skull.  In craniofacial FD that enlargement can mean facial asymmetry or proptosis (protrusion of the eyeball) which also can stress or damage the optic nerve. This study examines these contributing factors and suggested an improved method of monitoring craniofacial FD to prevent vision loss.  This paper provides normative data for kids, which is really helpful for clinicians monitoring craniofacial FD.