Research Archive

FD/MAS Publications

Association of Hearing Loss and Otologic Outcomes With Fibrous Dysplasia. JAMA Otolaryngol Head Neck Surg. 2018

Comorbidity, Craniofacial care

This study examines FD lesions surrounding the ear and skull base. Though many patients fear the loss of hearing, research suggests watchful waiting rather than aggressive surgery.

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Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium. Orphanet Journal of Rare Diseases 2019


Treatment guidelines compiled by the International Consortium of FD/MAS researchers. These guidelines include a series of flowcharts that can help patients and caregivers decide on appropriate screening and treatment plans.


Bone-Grafting in Polyostotic Fibrous Dysplasia. J Bone Joint Surg Am. 2016

Axial and Appendicular Management

Research suggests that bone grafting is not an effective way to remove FD lesions since lesions tend to regrow and take over otherwise healthy bone grafts.



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Optimizing your In-Person and Telehealth Visits


A discussion to empower you to make the most of your medical visits with fibrous dysplasia and McCune-Albright syndrome (FD/MAS) led by Medical Advisory Council Member Dr. Edward Hsiao of the University of California San Fransisco.

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Rehabilitation for Daily Life Function for Persons with FD/MAS -Video

Axial and Appendicular Management General

Please enjoy this full recording of our November 8th, 2022 web program: Rehabilitation for daily life function for persons with FD/MAS, presented by Dr. Scott Paul of the NIH and FD/MAS advocate Tiffany Meyer.

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Covid-19 and FD/MAS 2021 Update -Video


COVID-19 and FD/MAS, an updated discussion hosted by FD/MAS Alliance with Drs. Alison Boyce, Michael Collins, Ed Hsiao, Robert Stanton, and Kelly Wentworth, March 2021.

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Covid-19 and FD/MAS 2020 -Video


COVID-19 and FD/MAS, a 2020 discussion hosted by FD/MAS Alliance with Drs. Alison Boyce, Michael Collins, Edward Hsiao, and Robert Stanton, and with Spanish translation by Ms. Karen Pozo The video did experience some interruption in the first five minutes but is clean through the remainder.

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FD/MAS and Reproductive Health – Video

Comorbidity Endocrine Care General

This December 2021 discussion covers fibrous dysplasia and McCune-albright syndrome (FD/MAS) and reproductive health with Dr. Veronica Gomez-Lobo of the NIH and FD/MAS Alliance President Lauren Ruotolo.

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