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Scientific & Medical
Advisory Councils

Scientific Advisory Council | Medical Advisory Council

Scientific Advisory Council

The FD/MAS Alliance Scientific Advisory Council (SAC) is made up of experienced scientists, clinicians, and researchers with a broad range of expertise in skeletal and endocrine biology. Members will assist the Board of Directors by:

  • Advising the Foundation on future directions for research and research-related policies
  • Participating in the creation of requests for research grant applications and the evaluation of proposals submitted for funding
  • Reviewing the research-related content of external communications

 

Michael Collins, MD (Acting Chairperson)

Tenured Senior Investigator
Chief, Skeletal Disorders & Mineral Homeostasis Section
National Institute of Dental and Craniofacial Research,
National Institutes of Health
Bethesda, MD
more information

Frank Barry, PhD

Scientific Director and Senior Scientist
UHN Arthritis Programme at the Krembil Research Institute
Professor of Cellular Therapy Regenerative Medicine Institute (REMEDI),
National University of Ireland
Galway, Ireland
more information

David B. Burr, PhD, FAAA, FORS, FASBMR

Distinguished Professor Emeritus
Indiana Center for Musculoskeletal Research
Department of Anatomy, Cell Biology, and Physiology
Indiana University School of Medicine
Department of Biomedical Engineering, IUPUI,
Indianapolis, IN
more information

Thomas O. Carpenter, MD

Professor of Pediatrics (Endocrinology) and of Orthopaedics and Rehabilitation
Director, Yale Center for X-Linked Hypophosphatemia
Medical Director, Hospital Research Unit
Yale University School of Medicine
New Haven, CT
more information

Matthew Drake, MD, PhD

Associate Professor of Medicine
Mayo Clinic College of Medicine
Rochester, MN
more information

Leonard B. Kaban, DMD, MD, FACS

Walter C. Guralnick Distinguished Professor &
Chief Emeritus
Department of Oral and Maxillofacial Surgery
Massachusetts General Hospital/Harvard University
Boston, MA
more information

Paul J. Kostenuik, PhD

Headshot of Paul Kostenuik

Founder And Owner, Phylon Pharma Services
Adjunct Professor, University of Michigan School of Dentistry
more information

Henry Kronenberg, MD

Chief of the Endocrine Unit, Massachusetts General Hospital
Professor of Medicine, Harvard Medical School
Boston, MA
more information

Horacio Plotkin, MD, FAAP

Chief Medical Officer, Glycomine Inc.
Adjunct Associate Professor of Pediatrics and Orthopedic Surgery, University of Nebraska
Arlington, MA
more information

Lilian I. Plotkin, PhD

Professor
Department of Anatomy, Cell Biology & Physiology, 5022A
Director, Histology and Histomorphometry Core
Indiana Center for Musculoskeletal Health
Indiana University School of Medicine
Indianapolis, IN
more information

Susanne Ragg, MD, PhD

Director, Integrated Cancer Service
Associate Professor of Pediatrics
University of Florida, College of Medicine-Jacksonville
Jacksonville, FL
more information

Dolores Shoback, MD

Professor of Medicine, UCSF
San Francisco VA Medical Center
San Francisco, CA
more information

Matthew Warman, MD

Director, Orthopedic Research Laboratories
Professor of Orthopedic Surgery
Harvard Medical School
Boston Children’s Hospital
Boston, MA
more information

Michael Whyte, MD

Emeritus Professor of Medicine, Washington University
St. Louis, MO
more information

 

Medical Advisory Council

The FD/MAS Alliance Medical Advisory Council (MAC) is made up of clinicians and researchers with knowledge of and experience in the clinical management of fibrous dysplasia and McCune-Albright syndrome (FD/MAS).

 

Alison Boyce, MD

Chief
Metabolic Bone Disorders Unit
National Institute of Dental and Craniofacial Research,
National Institutes of Health
Bethesda, MD
more information

Andrea Burke, DMD, MD

Acting Assistant Professor, Oral and Maxillofacial Surgery
School of Dentistry, University of Washington
more information

Michael T. Collins, MD - ex officio

Senior Clinical Investigator
Skeletal Disorders & Mineral Homeostasis Section
National Institute of Dental and Craniofacial Research
National Institutes of Health
more information

Dan Handel, MD

Former chief of Palliative Medicine, retired 2019
Denver Health Medical Center

Edward Hsiao, MD, PhD

Headshot of Dr. Ed Hsiao, MD

Assistant Professor
Division of Endocrinology and Metabolism
Institute for Human Genetics
more information

Janice Lee, DDS, MD, MS

Clinical Director – Oral & Maxillofacial Surgery
Craniofacial Anomalies & Regeneration Section
National Institute of Dental and Craniofacial Research
National Institutes of Health
more information

Scott M. Paul, MD

Associate Research Physician
Research Coordinator, Medical Staff Section
Rehabilitation Medicine Department, National Institutes of Health Clinical Center
more information

Fred Singer, MD

Director of the Endocrine and Bone Disease Center
John Wayne Cancer Institute, St. John’s Hospital
more information

Jason B. Malone, DO, FAAOS

Department of Orthopedics
Nemours Children’s Hospital, Orlando Florida
Assistant Professor at the University of Central Florida
more information

Audrey Thurm, PhD

Director of the Neurodevelopmental and Behavioral Phenotyping Service
Office of the Clinical Director
National Institute of Mental Health
National Institutes of Health
more information