Spotlight on YOU


Would you like to be featured as a patient or caregiver spotlight?

Living with a rare disease like fibrous dysplasia and McCune-Albright syndrome can be isolating.

That’s why FD/MAS Alliance thinks it’s important to share real stories of the real people who make up our incredible community.

We like to feature stories that are both universal (others in the FD/MAS community can relate to your experience) and unique (offer a certain vantage that is new, different, special, and/or inspiring). Does this describe YOUR story? We’d love to learn more about what makes you YOU! If you’d like to be featured (or you’d like to nominate someone to be featured) fill out this form and we’ll be in touch!


Got questions? reach out to us via