State of FD/MAS Research- 2023 FD/MAS Community Conference and ICFDMAS meeting

The International Consortium for Fibrous Dysplasia, McCune-Albright Syndrome (ICFDMAS) has achieved collaborative research papers, openly discussed clinical protocols, and emphasized pain management. Overall, the emphasis is on global engagement, collaboration, and patient-centered care for FD/MAS.

The FD/MAS Alliance Community Conference combined patient-centered science and real-world strategies for patients and families living with fibrous dysplasia, McCune-Albright syndrome (FD/MAS).

The FD/MAS Alliance (formerly Fibrous Dysplasia Foundation) is a community-driven 501c3 nonprofit that fosters the development of evidence-based treatments for Fibrous Dysplasia and McCune-Albright syndrome (FD/MAS). We advance research, provide education, and channel the voices of individuals and caregivers with FD/MAS.