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Strategic Plan
2025-2027

HomeStrategic Plan
About our process

FD/MAS Alliance

The FD/MAS Alliance (incorporated as the Fibrous Dysplasia Foundation) is a community-driven 501c3 nonprofit that fosters the development of evidence-based treatments for Fibrous Dysplasia and McCune-Albright syndrome (FD/MAS). We advance research, provide education and channel the voices of individuals and caregivers with FD/MAS.

The strategic plan was created over the course of a year by Spur Local and FD/MAS’s Strategic Planning Committee, comprised of staff and board members. Throughout the process, community partners, physicians, researchers, patients and caregiver's perspectives were centered. This plan builds on the organization’s previous successes and sets exciting goals for the next three years.

More about our work
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Our Goals

Support and Education

Diversify patient support and education

The FD/MAS Alliance is dedicated to expanding its patient education and support services, ensuring that we reach a broader and more diverse segment of the FD/MAS community. By creating accessible, patient-centered materials and leveraging multiple platforms for engagement, we will strengthen our connection to those we serve.

Awareness

Raise Awareness of FD/MAS and the FD/MAS Alliance

The FD/MAS Alliance recognizes the importance of raising awareness both within the medical and research communities and among the general public. By increasing the visibility of our work and the conditions we represent, we aim to drive greater recognition, funding, and support for our mission.

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Capacity

Strengthen Internal Capacity

To ensure we meet the growing needs of the FD/MAS community, the Alliance is committed to enhancing its internal capacity. This includes not only increasing staff and volunteer resources but also fostering stronger collaboration across our leadership and advisory boards. By doing so, we will be able to operate more efficiently and expand our impact.

Diversify

Increase and Diversify Funding Sources

The FD/MAS Alliance is dedicated to expanding its patient education and support services, ensuring that we reach a broader and more diverse segment of the FD/MAS community. By creating accessible, patient-centered materials and leveraging multiple platforms for engagement, we will strengthen our connection to those we serve.

Strategic Plan

2025-2027

To read the Strategic Plan in full, click here.