Support the Million Dollar Bike Ride

Cindi and Fred Levin are captaining a team to make the Fibrous Dysplasia Foundation eligible for significant amounts of research funds!

They write:

We are asking you to join us in the Million Dollar Bike Ride on May 9th as a cyclist, fundraiser or donator to the Fibrous Dysplasia Team.  We are captaining this team on behalf of our daughter Carly who has been battling this rare and painful bone disease. It is a special opportunity on two fronts.

First, the money that we raise is going to a DIRECT research grant for a treatment or cure for fibrous dysplasia.

Second, the Penn Orphan Disease Center will be MATCHING dollar for dollar the money we raise  up to an additional $50,000. You can support the Fibrous Dysplasia Team by donating through the following links or creating your own fundraising page on behalf of someone with fibrous dysplasia.


Donate to Cycle for Carly by clicking here! The Fibrous Dysplasia Foundation has already contributed $10,000 to this special opportunity!



donation thermometer Update: The Cycle for Carly team met their goal of raising $50,000! That means over $100,000 will be used to fund research FD/MAS.