News

Patient Spotlight: Mara Watson

Patient Spotlight

Mara’s battle with FD/MAS began when she was a toddler. After a seemingly minor fall she avoided putting any weight whatsoever on her leg and foot. A doctor’s appointment revealed a peculiar spot on her fibula that was diagnosed as benign.  Mara is now a resilient thirteen-year-old who has displayed an indomitable spirit throughout her […]

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$160K FD/MAS Research Funding Available

Foundation News Research News

We are delighted to share the Request for Applications for this year’s Team FD/MAS Million Dollar Bike Ride grants:   Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare multisystem disease caused by somatic mutations in GNAS. The mutation results in constitutive activation of the Gsα cAMP signaling pathway. Skeletal manifestations include bone pain, fractures, deformity, and […]

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A Letter and a Call to Action from Mara

Patient Spotlight

Hi! My name is Mara Watson, I’m 12 years old and this is my story. When I was one, I fell– like any toddler would–and couldn’t walk for a week. At that time, doctors looked at my bones and diagnosed me with a non-ossified fibroma, which means that, that bone had a small part of […]

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2021 Team FD/MAS Research Grants Announced

Foundation News Research News

FD/MAS Alliance is thrilled to share that three FD/MAS research grants have been awarded from the 2021 Million Dollar Bike Ride! Last spring, Team FD/MAS raised $161,373 for fibrous dysplasia, McCune-Albright syndrome (FD/MAS)-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific […]

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