News

Patient Spotlight: Mara Watson

Patient Spotlight

Mara’s battle with FD/MAS began when she was a toddler. After a seemingly minor fall she avoided putting any weight whatsoever on her leg and foot. A doctor’s appointment revealed a peculiar spot on her fibula that was diagnosed as benign.  Mara is now a resilient thirteen-year-old who has displayed an indomitable spirit throughout her […]

Click to Read

Miss (and Ms.) Amazing

Patient Spotlight

Meet Ellasyn Berry of Little Chute, Wisconsin.  At 13 years old, she is a rollercoaster rider, a swimmer, a Bath & Body Works shopper, a future anesthesiologist, and living every day with McCune-Albright syndrome (MAS) and Polyostotic Fibrous Dysplasia (PFD).  Ellasyn is surrounded by family that she lovingly describes as “chaotic.” Mom (Leah) works for […]

Click to Read

A Letter and a Call to Action from Mara

Patient Spotlight

Hi! My name is Mara Watson, I’m 12 years old and this is my story. When I was one, I fell– like any toddler would–and couldn’t walk for a week. At that time, doctors looked at my bones and diagnosed me with a non-ossified fibroma, which means that, that bone had a small part of […]

Click to Read

Over, Under, Around, or Through

Patient Spotlight

When Fred Zeth was 8 years old, his parents were told he had cancer. “Take him home and enjoy him,” the doctors told the Zeths, “because he won’t last long.” It was the late 1950s, and none of the doctors in the greater Philadelphia area had ever heard of fibrous dysplasia or McCune-Albright syndrome (FD/MAS). […]

Click to Read