News

Missed the Conference? You Can Still Learn From the Experts

Advocacy News Foundation News Patient Spotlight Research News Treatment News

Patient and researcher meetings are important because they allow engaged members of a rare disease community to organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham the UK. FDF hosted the United States meeting and attended both European meetings.  […]

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3rd International FD/MAS Meeting in the Netherlands

Advocacy News Foundation News Patient Spotlight Treatment News

Patient and researcher meetings are important because they allow engaged members of a rare disease community to organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham in the UK. FDF hosted the United States meeting and attended both European meetings […]

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FDF Attends 2017 FDMAS Patient Meeting in Birmingham

Advocacy News Foundation News Patient Spotlight Treatment News

Patient and researcher meetings are important because they allow a rare disease community to learn, organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham in the UK. FDF hosted the United States meeting and attended both European meetings, including […]

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