
Missed the Conference? You Can Still Learn From the Experts
Advocacy News Foundation News Patient Spotlight Research News Treatment NewsPatient and researcher meetings are important because they allow engaged members of a rare disease community to organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham the UK. FDF hosted the United States meeting and attended both European meetings. […]
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3rd International FD/MAS Meeting in the Netherlands
Advocacy News Foundation News Patient Spotlight Treatment NewsPatient and researcher meetings are important because they allow engaged members of a rare disease community to organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham in the UK. FDF hosted the United States meeting and attended both European meetings […]
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FDF Attends 2017 FDMAS Patient Meeting in Birmingham
Advocacy News Foundation News Patient Spotlight Treatment NewsPatient and researcher meetings are important because they allow a rare disease community to learn, organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham in the UK. FDF hosted the United States meeting and attended both European meetings, including […]
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