A Better Method for Detecting the Risk of Vision Loss in Craniofacial FD

Foundation News Research News Treatment News

Optic neuropathy or vision loss is a major concern for people with craniofacial fibrous dysplasia (FD). Because surgical correction can lead to further complications, management and treatment for FD related vision loss has been a challenge and source of debate for decades. A previous study found that FD lesions closing around the optic canal rarely […]

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Dr. Alison Boyce Honored With FDF Constellation Award

Foundation News

Any patient who participates in the NIH Natural History Study is familiar with the warmth and kindness of Dr. Alison Boyce, one of the study’s lead investigators. Dr. Boyce’s diligence and compassion have helped so many patients. At any hour of the day, the 200 patients enrolled in the NIH Natural History know that they […]

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