A Patient’s Roadmap to Curing A Rare Disease
Advocacy News Foundation News Research NewsReport from the Global Genes Summit: With community, innovative treatments and cures happen! Having recently embraced my role as the new executive director of the Fibrous Dysplasia Foundation (FDF), I embarked on a steep learning curve. Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a very complicated disease and the path to treatment can feel daunting. Luckily, […]
Click to ReadA Patient’s Roadmap for Curing Rare Disease
Advocacy News Foundation NewsAdrienne McBride attends the Global Genes Summit Having recently embraced my role as the new executive director of the Fibrous Dysplasia Foundation (FDF), I embarked on a steep learning curve. Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a very complicated disease and the path to treatment can feel daunting. Luckily, I am surrounded by an extraordinary, […]
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