News

FD/MAS and Research Webinar

Research News

Join us December 16th, 2022 at 12:00 pm EST for a discussion of FD/MAS and Research. Many community members ask: Where are we on the path to a treatment? When will I be able to take this injection as a pill? What is the focus of research on FD/MAS these days? Dr. Alison Boyce of […]

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Research Article Emphasizes the Importance of Screening for Patients with FD/MAS for Pain

Foundation News Research News Treatment News

Pain in people with FD/MAS is common and can come and go. While not every person with FD/MAS experiences FD-related pain, every person who seeks help for FD/MAS pain should be taken seriously.  Among many clinicians, there has been a longstanding and misinformed belief that FD/MAS does not cause pain. This idea has been refuted, […]

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bone pain webinar

Bone Pain and Fibrous Dysplasia, McCune-Albright syndrome (FD/MAS)

Treatment News

In July 2021 FD/MAS Alliance launched a monthly webinar series, live-streamed and available for free. Topics will range from medical education to more specific research updates, and will also include social topics of particular interest to the community. We are especially grateful to IONIS, Ultragenyx, and our Charlie’s Angels giving circle for supporting this series. These […]

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