News

Recent Study Examines Fertility and FD/MAS

Foundation News Research News

Many McCune-Albright syndrome (MAS) patients have questions and concerns about fertility. This is not surprising, since MAS is some combination of fibrous dysplasia (FD) bone lesions, cafe-au-lait birthmarks, and hormone imbalances. These hormone imbalances can often lead to problems with patients’ reproductive systems, especially problems like ovarian cysts. While there are ways to manage those […]

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FDMAS Patient Registry

Registry Data Fuels New Research

Foundation News Research News

2018 is the first year that the FD/MAS Patient Registry accepted applications from researchers to use the Registry for research projects, and the immediate interest has exceeded all expectations. Thanks to the 800+ patients and caregivers who have registered in the study and contributed over 100,000 data points, researchers are using the FD/MAS Patient Registry […]

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Patient Organizations & Doctors Gather to Guide Progress for Better Treatment on a Global Scale

Advocacy News Foundation News

Momentum is building among researchers across the world who study fibrous dysplasia and McCune-Albright syndrome (FD/MAS). From December 1st through December 3rd, a powerful group of clinical researchers met in Lyon, France for the Second International FD/MAS Initiative Meeting. Attendees from the research world included US researchers Michael Collins and Alison Boyce of the National […]

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