FDF to Represent the Rare Disease Patient Voice at Congressional Briefing on Rare Disease
Advocacy News Foundation NewsFibrous dysplasia and McCune-Albright syndrome (FD/MAS) will once again be on the minds of lawmakers at this year’s Rare Disease Week on Capitol Hill. The Congressional Rare Disease Caucus is hosting a briefing for lawmakers and the general public on the state of rare disease. FDF’s Executive Director, Deanna Portero, will present at this briefing […]
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