Rare Bone Community Mourns the Loss of a Brave Young Patient

Foundation News Patient Spotlight

Late last year, fibrous dysplasia (FD) took an unprecedented spotlight. News outlets large and small told the story of 14 year-old Emanuel Zaya. The Cuban teen was suffering with a 10-pound bone tumor on his face. The story attributed Emanuel’s condition to FD.  Consequently, this rare bone disease went viral as the public became invested […]

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