News

A Farewell to an Unmatched Leader

Foundation News

Please join us in thanking Dr. Andrew Shenker as he steps down from his role on the FD/MAS Scientific Advisory Council (SAC). Dr. Shenker was part of the team that discovered the gene mutation that leads to FD/MAS  and has served as SAC chair for over two years. He truly raised the bar for SAC […]

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A New Team FD/MAS, Same Focus on Research

Foundation News Research News

The year 2020 has felt different from 2019 in so many ways, but some important things have remained consistent. This year, just as in the last 5 years, Team FD/MAS will be awarding a research grant to an FD/MAS researcher through the UPenn Orphan Disease Center’s (ODC) Million Dollar Bike Ride. With thanks to Association […]

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