A Patient’s Roadmap for Curing Rare Disease

Advocacy News Foundation News

Adrienne McBride attends the Global Genes Summit Having recently embraced my role as the new executive director of the Fibrous Dysplasia Foundation (FDF), I embarked on a steep learning curve.  Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a very complicated disease and the path to treatment can feel daunting. Luckily, I am surrounded by an extraordinary, […]

Click to Read