A Patient’s Roadmap for Curing Rare Disease
Advocacy News Foundation NewsAdrienne McBride attends the Global Genes Summit Having recently embraced my role as the new executive director of the Fibrous Dysplasia Foundation (FDF), I embarked on a steep learning curve. Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a very complicated disease and the path to treatment can feel daunting. Luckily, I am surrounded by an extraordinary, […]
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