Rare Bone Community Mourns the Loss of a Brave Young Patient
Foundation News Patient SpotlightLate last year, fibrous dysplasia (FD) took an unprecedented spotlight. News outlets large and small told the story of 14 year-old Emanuel Zaya. The Cuban teen was suffering with a 10-pound bone tumor on his face. The story attributed Emanuel’s condition to FD. Consequently, this rare bone disease went viral as the public became invested […]
Click to Read