News

Faces of FD/MAS – 2024 Photo Sharing

FDMAS Awareness Week

February 20th-27th is FD/MAS Global Awareness Week. FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients. In 2024 we celebrate the fifth annual FD/MAS Global Awareness Week with the theme #FacesofFDMAS […]

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2020 for our 20th Chromosome

Advocacy News Foundation News

The First-Ever FDMAS Global Awareness Week! FDF participated in the first-ever FD/MAS Global Awareness Week, February 20-28th, 2020. February 20th was chosen as the launch of this week of awareness and advocacy because both FD and MAS as well as related diseases such as Mazabraud syndrome all originate from a mutation on the 20th chromosome. […]

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Imagine a World without FD|MAS

FDMAS Awareness Week

February 20th 2020 marks the beginning of the very first FD|MAS Global Awareness Week. We’re celebrating by asking patients, caregivers, and advocates to share their vision for a world without FD|MAS. What would your life look like if this horrible disease were cured? Would you… Have perfect attendance at school? Be a college football star? […]

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Join Us for the Inaugural FD|MAS Global Awareness Week: February 20-27

Advocacy News Foundation News

Fibrous Dysplasia Foundation, Patiëntenvereniging Fibreuze Dysplasie, ASOCIACIÓN DE DISPLASIA FIBROSA – ADF, Fibrous Dysplasia Support Society UK, Eamas, and MASFD of France are announcing the first annual FD/MAS Global Awareness Week, between the 20th and 27th of February, 2020. FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and […]

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