Your gift changes lives
Constant Contact Foundation NewsGiving Tuesday, December 2, 2020, was very exciting as the FD/MAS Alliance launched Charlie Harles’ Angels, our new monthly giving society, in honor of our founder, Charlie Harles! We’ve added new monthly donors to our ranks today, increasing our overall monthly giving pledges to over $1,800, which provides a foundation of support for people living […]
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2020 for our 20th Chromosome
Advocacy News Foundation NewsThe First-Ever FDMAS Global Awareness Week! FDF participated in the first-ever FD/MAS Global Awareness Week, February 20-28th, 2020. February 20th was chosen as the launch of this week of awareness and advocacy because both FD and MAS as well as related diseases such as Mazabraud syndrome all originate from a mutation on the 20th chromosome. […]
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Imagine a World without FD|MAS
FDMAS Awareness WeekFebruary 20th 2020 marks the beginning of the very first FD|MAS Global Awareness Week. We’re celebrating by asking patients, caregivers, and advocates to share their vision for a world without FD|MAS. What would your life look like if this horrible disease were cured? Would you… Have perfect attendance at school? Be a college football star? […]
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Join Us for the Inaugural FD|MAS Global Awareness Week: February 20-27
Advocacy News Foundation NewsFibrous Dysplasia Foundation, Patiëntenvereniging Fibreuze Dysplasie, ASOCIACIÓN DE DISPLASIA FIBROSA – ADF, Fibrous Dysplasia Support Society UK, Eamas, and MASFD of France are announcing the first annual FD/MAS Global Awareness Week, between the 20th and 27th of February, 2020. FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and […]
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